This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
This is the key domains that the measure is targeting.
Patient enablement, health promotion, personal relationships and burden of syptoms.
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Main context tested in
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Main countries used in
The main countries in which the measure has been developed and used.
e.g. Adults, Children, Elderly
Adolescents, adults, older people.
Main uses of measure
The context in which the measure is most often used – e.g. clinical trials; national surveys.
Used in UK?
Whether the instrument has been tested and validated within a UK healthcare context.
A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
Flesch-Kincaid readability tests
A rating that corresponds approximately to US school grade level. For example, a score of 8.0 means that an eighth grader can understand the document. Generally, a score of 7 or 8 should be appropriate.
It measures patients perceptions of patient-centred
care during the last visit with a family physician. The
instrument has 5 subscales: communication and partnership
(11 items), personal relationship (3 items), health
promotion (2 items), positive and clear approach to the
problem (3 items), and interest in effect on life (2 items),
Generic care planning
Shared decision making
Behaviour and communication skills
Knowledge of patient
A brief description of the initially reported psychometric properties of the measure.