A 15-item questionnaire measuring to what extent older people receiving home care experience the care as being client centred. Item generation from qualitative study, experts, staff and clients of home care.
PCCC or QoL?
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This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
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This is the key domains that the measure is targeting.
Person-centred care, access, organisation of care. Recognizing personhood, respecting personhood, respecting autonomy
Type of measure
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The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
Respondent
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The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Older people, people with long-term conditions
Main context tested in
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The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Care homes
Main countries used in
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The main countries in which the measure has been developed and used.
The Netherlands, Canada
Target age
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e.g. Adults, Children, Elderly
Older people
Main uses of measure
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The context in which the measure is most often used – e.g. clinical trials; national surveys.
To evaluate the client-centredness of home care from a client perspective.
Used in UK?
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Whether the instrument has been tested and validated within a UK healthcare context.
No
Impact
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A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
0.6
Language
Dutch
Official translations
English
Domains
Domain description
Person-centred care, access, organisation of care. Recognizing personhood, respecting personhood, respecting autonomy
100%
80%
60%
40%
20%
0%
11
3
6
10
6
10
Empowerment/activation
Self-management
Generic care planning
Shared decision making
Behaviour and communication skills
Information sharing
Psychometrics
Brief description
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A brief description of the initially reported psychometric properties of the measure.
Estimated content validity by experienced nurses and clients, pilot tested in six home care clients. Construct validity estimated in one factor explaining 58% of total variance.Cronbachs alpha of total scale: 0.94 On the negative side, estimates of item
Co-developed with patients
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Whether the measure was co-developed with patients, a critical stage in the design and implementation of truly person-centred measures.
Y
CTT or IRT
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Whether the measure uses Classical Test Theory, or the newer Item Response Theory