The 14-item version has been created in response to an immediate requirement for an (adapted) English version of the ADDQoL19 in a shorter form. It was designed for use by those people who, for various reasons, might find the longer version too arduous (e.g. low literacy, vision problems). ADDQoL is a Diabetes HrQoL measure that is short, well-translated, well used in the UK context and has been independently assessed as having well-validated psychometric properties.
PCCC or QoL?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Health-Related Quality of Life
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.