A tool designed for the parent or carer of a child in mental health services.
PCCC or QoL?
?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
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This is the key domains that the measure is targeting.
Positve/negative affect towards treatment received, communication, exchange of information, coordination, comfort, care and access.
Type of measure
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The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PREM
Respondent
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The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Carers
Permissive licence
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Whether the measure is free to use without major restrictions, or instead permission and/or licensing fees are required. E.g. if "Yes", you should seek authorisation/permission prior to using the instrument.
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Mental Health
Main context tested in
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The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Mental Health (Secondary?)
Main countries used in
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The main countries in which the measure has been developed and used.
UK
Target age
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e.g. Adults, Children, Elderly
Adults
Main uses of measure
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The context in which the measure is most often used – e.g. clinical trials; national surveys.
Patient reported experiences.
Used in UK?
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Whether the instrument has been tested and validated within a UK healthcare context.
Yes
Language
English
Flesch-Kincaid readability tests
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A rating that corresponds approximately to US school grade level. For example, a score of 8.0 means that an eighth grader can understand the document. Generally, a score of 7 or 8 should be appropriate.
1.1
Domains
Domain description
For parent or carer of child MH (communication, exchange of info, coordination, comfort, care, access)