PROM Detail

Short-Form Parkinsons Disease Questionnaire
  • Basic Information
  • Detailed Information
  • Domains
  • Psychometrics

Basic Information

Abbreviated name
PDQ-8
Full name
Short-Form Parkinsons Disease Questionnaire
Items ?
The number of questions in the survey
8
Short description
A short-form version of the most thoroughly tested and validated Parkinson's HRQoL instrument. It provides a single index measure of overall health status is acceptable or desirable.
PCCC or QoL? ?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Health-Related Quality of Life
Main Domains Measured ?
This is the key domains that the measure is targeting.
HRQoL in Parkinson's
Type of measure ?
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PROM
Respondent ?
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Patients
Permissive licence ?
Whether the measure is free to use without major restrictions, or instead permission and/or licensing fees are required. E.g. if "Yes", you should seek authorisation/permission prior to using the instrument.
No
Licence link ?
A link to the vendor/supplier for licensing of the measure

Detailed Information

Year developed ?
The year in which the measure was first published.
2007
Country developed in ?
The main country[s] in which the measure was first developed.
UK
Original publication ?
The publication in which the measure was originally published.
Search Citations of Original Reference
Website link ?
A link to the developer of the measure, if they have a website.
http://isis-innovation.com/outcome-measures/parkinsons-disease-questionnaire-pdq-39-pdq-8/
Target condition ?
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Parkinson's
Main context tested in ?
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
QoL for Parkinson's
Main countries used in ?
The main countries in which the measure has been developed and used.
UK
Target age ?
e.g. Adults, Children, Elderly
Adults
Main uses of measure ?
The context in which the measure is most often used – e.g. clinical trials; national surveys.
Parkinson's
Used in UK? ?
Whether the instrument has been tested and validated within a UK healthcare context.
Yes
Language
English
Other versions available
A long-form 39 item version is available
Aggregable
Yes

Domains

Domain description
HRQoL in Parkinson's

Psychometrics

Brief description ?
A brief description of the initially reported psychometric properties of the measure.
The longer version is the most thoroughly tested and used HRQoL measure for PD, and has been recommended in two independent reviews, with adequate psychometric properties. http://www.ncbi.nlm.nih.gov/pubmed/11796776 http://www.ncbi.nlm.nih.gov/pubmed/21735480
Co-developed with patients ?
Whether the measure was co-developed with patients, a critical stage in the design and implementation of truly person-centred measures.
Y
CTT or IRT ?
Whether the measure uses Classical Test Theory, or the newer Item Response Theory
CTT