PROM Detail

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ALGA-Breast Cancer
  • Basic Information
  • Detailed Information
  • Domains
  • Psychometrics

Basic Information

Abbreviated name
ALGA-BC
Full name
ALGA-Breast Cancer
Items ?
The number of questions in the survey
29
Short description
This a multidimensional questionnaire that has been designed with the explicit goals of delivering personalised and patient centred-medicine. It assesses the breast cancer patient's physical and mental characteristics in order to provide physicians, prior to the consultation, with a patient's profile that is supposed to facilitate subsequent communication, interaction, and information delivery between the doctor and the patient.
PCCC or QoL? ?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured ?
This is the key domains that the measure is targeting.
Multidimensional QoL tool, self-rated health, anxiety, self-efficacy, cognitive function (e.g.memory).
Type of measure ?
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PROEM
Respondent ?
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Patients

Detailed Information

Year developed ?
The year in which the measure was first published.
2015
Country developed in ?
The main country[s] in which the measure was first developed.
Italy
Original publication ?
The publication in which the measure was originally published.
http://www.ncbi.nlm.nih.gov/pubmed/?term=26064067
Target condition ?
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Cancer
Main context tested in ?
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Breast Cancer
Main countries used in ?
The main countries in which the measure has been developed and used.
Italy
Target age ?
e.g. Adults, Children, Elderly
Adults
Main uses of measure ?
The context in which the measure is most often used – e.g. clinical trials; national surveys.
Designed to assess the breast cancer patient's physical and mental characteristics in order to provide physicians, prior to the consultation, with a patient's profile that is supposed to facilitate subsequent communication.
Used in UK? ?
Whether the instrument has been tested and validated within a UK healthcare context.
No
Language
English, Italian

Domains

Domain description
Multidimensional QoL tool, self-rated health, anxiety, self-efficacy, cognitive function (e.g.memory).

Psychometrics

Brief description ?
A brief description of the initially reported psychometric properties of the measure.
Test-retest reliability and internal consistency were reported as being good in the original paper detailing the development and psychometric testing of this measure (Gorini et al, 2015). Satisfactory Cronbach