PROM Detail

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After-death Bereaved Family Member Interview
  • Basic Information
  • Detailed Information
  • Domains
  • Psychometrics

Basic Information

Abbreviated name
ADBFI
Full name
After-death Bereaved Family Member Interview
Items ?
The number of questions in the survey
Tool
Short description
A survey administered to a proxy individual to measure quality of care at the end of life from the perspective of family members. It is based on a patient-focused, family-centred approach that examines whether end-of-life care meets the expectations and needs of the dying person and their family members. The instrument investigates a comprehensive coverage of domains, including whether physical comfort and emotional support are provided to the dying patient, whether shared decision making is promoted, if care is focused on the individual, whether the needs of family members are met and if satisfactory coordination of care is achieved. This was the most cited of measures in a recent systematic review for measuring EoL experience - http://www.ncbi.nlm.nih.gov/pubmed/25543110. It covers a broad variety of domains and has been used in the widest contexts, including nursing homes, hospitals, cancer centres and outpatient services for diseases including cancer and dementia.
PCCC or QoL? ?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured ?
This is the key domains that the measure is targeting.
End of life, palliative care
Type of measure ?
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PREM
Respondent ?
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Carers
Copy of questionnaire
https://nts122.chcr.brown.edu/pcoc/resourceguide/resourceguide.pdf

Detailed Information

Year developed ?
The year in which the measure was first published.
2001
Country developed in ?
The main country[s] in which the measure was first developed.
US
Original publication ?
The publication in which the measure was originally published.
Search Citations of Original Reference
http://www.ncbi.nlm.nih.gov/pubmed/11532588
Website link ?
A link to the developer of the measure, if they have a website.
https://nts122.chcr.brown.edu/pcoc/resourceguide/resourceguide.pdf
Target condition ?
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Bereaved Family Members
Main context tested in ?
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Bereaved family members in a variety of contexts.
Main countries used in ?
The main countries in which the measure has been developed and used.
US, Netherlands, UK
Target age ?
e.g. Adults, Children, Elderly
Adults
Main uses of measure ?
The context in which the measure is most often used – e.g. clinical trials; national surveys.
Generic
Used in UK? ?
Whether the instrument has been tested and validated within a UK healthcare context.
Yes
Impact ?
A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
2.466666667
Language
English

Domains

Domain description
The instrument investigates a comprehensive coverage of domains, including whether physical comfort and emotional support are provided to the dying patient, whether shared decision making is promoted, if care is focused on the individual, whether the needs of family members are met and if satisfactory coordination of care is achieved.

Psychometrics

Brief description ?
A brief description of the initially reported psychometric properties of the measure.
Cronbach's alpha scores varied from 0.58 to 0.87, with two problem scores (each of which had only 3 survey items) having a low alpha of 0.58. The mean item-to-total correlations for the other problem scores varied from 0.36 to 0.69, and the mean item-to-item correlations were between 0.32 and 0.70. The proposed problem scores or scales, with the exception of closure and advance care planning, demonstrated a moderate correlation (i.e., from 0.44 to 0.52) with the overall rating of satisfaction (as measured by a five-point, 'excellent' to 'poor' scale).