PROM Detail

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Satisfaction with Care at the End-of-Life in Dementia
  • Basic Information
  • Detailed Information
  • Domains
  • Psychometrics

Basic Information

Abbreviated name
EOLD-SWC
Full name
Satisfaction with Care at the End-of-Life in Dementia
Items ?
The number of questions in the survey
10
Short description
Satisfaction with Care at the End-of-Life in Dementia (EOLD-SWC) & Comfort Assessment in Dying with Dementia (EOLD-CAD) are a pair of tools for EoL care in dementia. Both scales have been deemed as being the most valid and internally consistent for end-of-life in dementia in systematic review - http://www.ncbi.nlm.nih.gov/pubmed/21814875. Furthermore, this set of scales was recently signposted in a UK a publication of implementation of UK national policies - http://www.ncbi.nlm.nih.gov/pubmed/?term=26481400
PCCC or QoL? ?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured ?
This is the key domains that the measure is targeting.
End of life, palliative care, physical distress, dying symptoms, emotional distress, and well being
Type of measure ?
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PREM
Respondent ?
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Carers

Detailed Information

Year developed ?
The year in which the measure was first published.
2001
Country developed in ?
The main country[s] in which the measure was first developed.
US
Original publication ?
The publication in which the measure was originally published.
Search Citations of Original Reference
http://www.ncbi.nlm.nih.gov/pubmed/11723370
Target condition ?
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
End of Life Care for Dementia
Main context tested in ?
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
End of Life Care for Dementia
Main countries used in ?
The main countries in which the measure has been developed and used.
US
Target age ?
e.g. Adults, Children, Elderly
Older people
Main uses of measure ?
The context in which the measure is most often used – e.g. clinical trials; national surveys.
End of Life care
Used in UK? ?
Whether the instrument has been tested and validated within a UK healthcare context.
No
Impact ?
A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
2.466666667
Language
English

Domains

Domain description
Subscales for physical distress, dying symptoms, emotional symptoms and wellbeing

Psychometrics

Brief description ?
A brief description of the initially reported psychometric properties of the measure.
Internal consistency a = 0.82. The most valid and internally consistent tool for end-of-life in dementia in systematic review - http://www.ncbi.nlm.nih.gov/pubmed/21814875