The number of questions in the survey

This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.

This is the key domains that the measure is targeting.

The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.

The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)

The year in which the measure was first published.

The main country[s] in which the measure was first developed.

The publication in which the measure was originally published.

The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)

The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).

The main countries in which the measure has been developed and used.

Whether the instrument has been tested and validated within a UK healthcare context.

A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.

A brief description of the initially reported psychometric properties of the measure.