PROM Detail

Person centred coordinated experience questionnaire (formerly know as the modified long term conditions questionnaire 6)
  • Basic Information
  • Detailed Information
  • Domains
  • Psychometrics

Basic Information

Abbreviated name
P3C-EQ
Full name
Person centred coordinated experience questionnaire (formerly know as the modified long term conditions questionnaire 6)
Items ?
The number of questions in the survey
11+trigger question
Short description
The most modern of the broad-coverage P3C measures, it is a modified version of the LTCQ-6. The measure was developed in 2015, so that there could be a measure that provided extensive coverage of the domains of Person Centred Care and Coordination. The development process involved adding additional questions to the original measure that addressed evolving healthcare concepts, such as coordination and the use of personalised care plans. It was developed through extensive stakeholder engagement with patients, commissioners and practitioners who chose this measure to develop from a shortlist of identified measures. Despite its very broad coverage, the measure is concise and efficient. It probes most domains of P3C in 11 questions (with the only exceptions being continuity of care and consistency of care). However if this measure is used with the same cohort over time, continuity can be explored through the combined construct of the tool.
PCCC or QoL? ?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured ?
This is the key domains that the measure is targeting.
Goal setting, empowerment/activation, self-management, , carer involvement, care planning, decision making, information and communication,knoweldge of patient
Type of measure ?
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PREM
Respondent ?
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Patients

Detailed Information

Year developed ?
The year in which the measure was first published.
2015
Country developed in ?
The main country[s] in which the measure was first developed.
UK
Original publication ?
The publication in which the measure was originally published.
Under review: Health & Quality of Life outcomes
Target condition ?
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Long term conditions
Main context tested in ?
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Vanguards & Pioneer person-centred care evaluations
Main countries used in ?
The main countries in which the measure has been developed and used.
UK, Australia, Europe
Target age ?
e.g. Adults, Children, Elderly
Adults
Used in UK? ?
Whether the instrument has been tested and validated within a UK healthcare context.
Yes
Language
English
Official translations
Currently being translated into Estonian, German, Spanish, Norwegian & Dutch.
Other versions available
It forms a suite of measures probing patient, practitioners and organisational perspectives

Domains

Domain description
Goal setting, empowerment/activation, self-management, , carer involvement, care planning, decision making, information and communication,knoweldge of patient
100%
80%
60%
40%
20%
0%
2
8
7
1
4
1
1
3
2
2
2
3
2
Goal setting
Empowerment/activation
Self-management
Carer involvement
Care plan
Case manager/key person
Single point of contact
Care coordination within teams
Generic care planning
Shared decision making
Behaviour and communication skills
Information sharing
Knowledge of patient

Psychometrics

Brief description ?
A brief description of the initially reported psychometric properties of the measure.
Face & Content validity established
Co-developed with patients ?
Whether the measure was co-developed with patients, a critical stage in the design and implementation of truly person-centred measures.
Yes