A scale designed to measure the quality of the structure and process in palliative care from the patient's perspective.
PCCC or QoL?
?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
?
This is the key domains that the measure is targeting.
Physical care, decision making and coordination/consistency.
Type of measure
?
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PROEM
Respondent
?
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Cancer and palliative care
Main context tested in
?
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Inpatient
Main countries used in
?
The main countries in which the measure has been developed and used.
Japan
Target age
?
e.g. Adults, Children, Elderly
Adults
Main uses of measure
?
The context in which the measure is most often used – e.g. clinical trials; national surveys.
Palliative Care
Used in UK?
?
Whether the instrument has been tested and validated within a UK healthcare context.
No
Impact
?
A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
0.5
Language
Japanse
Official translations
English
Domains
Domain description
An experience and outcome instrument.
Outcome domains: QoL
Experience domains: decision making, information, coordination
100%
80%
60%
40%
20%
0%
1
1
1
1
1
1
1
2
1
Goal setting
Empowerment/activation
Care coordination within teams
Generic care planning
Shared decision making
Relational continuity
Behaviour and communication skills
Information sharing
Knowledge of patient
Psychometrics
Brief description
?
A brief description of the initially reported psychometric properties of the measure.
The Cronbach ? coefficient of the total score was 0.97, and the intraclass correlation coefficient of the total score was 0.67.