The dyadic version of the existing OPTION measure was developed so that a single tool could be used to assess the extent to which patients had engaged in shared decision making from two viewpoints (the patients and the health care practitioners). The developers believed it would be more advantageous to adapt an existing decision making tool, rather than develop a new one, because they could benefit from the rigorous testing that had already been applied to the original measure. Specifically, that it had the psychometric data to support its uni-dimensional nature (Cook & Kenny, 2005; LeBlanc, Kenny, OConnor & Legare, 2009).
PCCC or QoL?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PREM (but can be used by health practitioners too)