PROM Detail

Patient Generated Index / Modified Patient Generated Index
  • Basic Information
  • Detailed Information
  • Domains
  • Psychometrics

Basic Information

Abbreviated name
Full name
Patient Generated Index / Modified Patient Generated Index
Short description
Although it is a quality of life measure, the PGI does allows the individual to select personally relevant areas for improvement through the application of a point scale. Various adaptations have been made to suit a variety of patient groups. It has a well-developed conceptual model, and the modified version, in particular, is able to detect change.
PCCC or QoL? ?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Type of measure ?
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
Semi-structured interview
Respondent ?
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Copy of questionnaire

Detailed Information

Year developed ?
The year in which the measure was first published.
Country developed in ?
The main country[s] in which the measure was first developed.
Original publication ?
The publication in which the measure was originally published.
Search Citations of Original Reference



Brief description ?
A brief description of the initially reported psychometric properties of the measure.
There are several version of the PGI. A study sought to provide a structured review of the measure by reviewing the findings from 18 studies, using grading criteria, adapted from those developed, to aid outcome measure selection for use with older people. The PGI was found to be adequately reliable for group comparisons and valid, but evidence for responsiveness was unclear. The authors concluded that versions of the measure that use fewer points in their Likert scales may have higher reliability.'_experience_with_the_Patient_Generated_Index_PGI_of_quality_of_life_A_graded_structured_review