QUALITY OF END-OF-LIFE CARE (QEOLC-10): COMMON SOLUTION, PATIENT VERSION
The number of questions in the survey
The common solution questionnaire provided here is composed of 10 items and may be used with patients who have been asked to evaluate the quality of end-of-life care. The 10 items were selected from a larger set of items using factor analytic approaches, and represent all five domains that we had identified previously as important to the quality end-of-life care. The items are the same for all respondent-types, making it easier to compare scores across respondents. The items provide a single score, derived as a simple mean of item values.
PCCC or QoL?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
This is the key domains that the measure is targeting.
Communication skills, symptom skills, affective skills, patient-centered values, and patient-centered systems
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
Patient Reported Experience Measure
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
A link to the vendor/supplier for licensing of the measure