Diabetes Distress Scale
The number of questions in the survey
DDS focuses on distress involving clinicians and treatment, and motivational and behavioural problems of diabetes patients.
PCCC or QoL?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Main Domains Measured
This is the key domains that the measure is targeting.
Emotional burden (5 items, e.g. ‘Feeling that diabetes controls my life’); Physician-related distress (4 items, e.g. ‘Feeling that my doctor doesn’t take my concerns seriously enough’); Regimen-related distress (5 items, e.g. ‘Feeling that I am not testin
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Whether the measure is free to use without major restrictions, or instead permission and/or licensing fees are required. E.g. if "Yes", you should seek authorisation/permission prior to using the instrument.
Free for Non-for Profit Organisations
A link to the vendor/supplier for licensing of the measure
The year in which the measure was first published.
Country developed in
The main country[s] in which the measure was first developed.
The publication in which the measure was originally published.
Polonsky, W. H., L. Fisher, J. Earles, R. J. Dudl, J. Lees, J. Mullan and R. A. Jackson (2005). "Assessing Psychosocial Distress in Diabetes: Development of the Diabetes Distress Scale” Diabetes Care Mar 2005, 28 (3) 626-631; DOI: 10.2337/diacare.28.3.626
A link to the developer of the measure, if they have a website.
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Main context tested in
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Main countries used in
The main countries in which the measure has been developed and used.
e.g. Adults, Children, Elderly
Main uses of measure
The context in which the measure is most often used – e.g. clinical trials; national surveys.
An instrument for the assessment of diabetes-related emotional distress.
Used in UK?
Whether the instrument has been tested and validated within a UK healthcare context.
Fisher, L., Skaff, M.M., Mullan, J.T., Arean, P., Glasgow, R. and Masharani, U. (2008), A longitudinal study of affective and anxiety disorders, depressive affect and diabetes distress in adults with Type 2 diabetes. Diabetic Medicine, 25: 1096-1101. doi:10.1111/j.1464-5491.2008.02533.x
Other versions available
T1-DDS, Parent-DDs, Partner-DDS,