The Oxford Participation and Activities Questionnaire (OX-PAQ) is a short, patient-reported outcome measure that is grounded on the World Health Organization International Classification of Functioning, Disability, and Health (ICF) (Kelly et al, 2015a). A distinguishing feature of this measure is that it taps into a patients level of social connectivity. Initial evaluations of the measure suggest that it can provide a valid and reliable measure of participation and activity. There are plans in place to validate it further by assessing its performance in a range of additional conditions and by assessing its sensitivity to change and predictive capabilities (Kelly et al, 2015b).
PCCC or QoL?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.