A tool for measuring patient perceptions of person-centred care
PCCC or QoL?
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This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
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This is the key domains that the measure is targeting.
Person-centred care - Personalization, empowerment, respectfulness, staff availability
Type of measure
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The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PREM
Respondent
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The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Generic
Main context tested in
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The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Hospital
Main countries used in
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The main countries in which the measure has been developed and used.
UK, Australia
Target age
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e.g. Adults, Children, Elderly
Adults and older people
Main uses of measure
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The context in which the measure is most often used – e.g. clinical trials; national surveys.
Inpatients; Older Patients
Used in UK?
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Whether the instrument has been tested and validated within a UK healthcare context.
Yes
Impact
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A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
0.2
Language
English
Domains
Domain description
personalisation, empowerment, information,
approachability/availability and respect, leaving additional service-related items in a miscellaneous
dimension.
100%
80%
60%
40%
20%
0%
6
2
6
6
Empowerment/activation
Shared decision making
Behaviour and communication skills
Information sharing
Psychometrics
Brief description
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A brief description of the initially reported psychometric properties of the measure.
Validity and reliability testing not presented - http://www.ncbi.nlm.nih.gov/pubmed/20566834