PROM Detail

Patient Participation in Rehabilitation Questionnaire
  • Basic Information
  • Detailed Information
  • Domains
  • Psychometrics

Basic Information

Abbreviated name
PPRQ
Full name
Patient Participation in Rehabilitation Questionnaire
Items ?
The number of questions in the survey
23
Short description
A questionnaire measuring patient participation in rehabilitation. Items were developed from interviews with patients who had a spinal cord injury. Findings from the testing phase led to the assertion that the PPRQ can adequately assess central aspects of participation in care and rehabilitation from the perspective of patients with spinal cord injury. The developers state that further studies, that utilise larger samples, will have to be conducted, so that the scale structure can be confirmed, as well as the sensitivity and responsiveness of the questionnaire.
PCCC or QoL? ?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured ?
This is the key domains that the measure is targeting.
Engagement, respect, decision-making, information, encouragement, involvement of family
Type of measure ?
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PREM
Respondent ?
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Patients

Detailed Information

Year developed ?
The year in which the measure was first published.
2013
Country developed in ?
The main country[s] in which the measure was first developed.
Sweden
Original publication ?
The publication in which the measure was originally published.
Search Citations of Original Reference
Website link ?
A link to the developer of the measure, if they have a website.
Target condition ?
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Rehabilitation
Main context tested in ?
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Rehabilitation
Main countries used in ?
The main countries in which the measure has been developed and used.
Sweden
Target age ?
e.g. Adults, Children, Elderly
Adults and older people
Main uses of measure ?
The context in which the measure is most often used – e.g. clinical trials; national surveys.
Designed to assess central aspects of participation in care and rehabilitation from the perspective of patients with spinal cord injury.
Used in UK? ?
Whether the instrument has been tested and validated within a UK healthcare context.
No
Language
Swedish

Domains

Domain description
Involvement of family, information, shared decision making, respect etc.
100%
80%
60%
40%
20%
0%
1
5
4
4
10
5
8
9
1
Goal setting
Empowerment/activation
Self-management
Carer involvement
Generic care planning
Shared decision making
Behaviour and communication skills
Information sharing
Knowledge of patient

Psychometrics

Brief description ?
A brief description of the initially reported psychometric properties of the measure.
Item convergent validity was supported as evidenced by the fact that all item-scale correlations were well above the criterion of 0.40 (range 0.67