The PPPC was developed in Canada and based on empirical studies of the doctor-patient relationship (M. Stewart et al. 2000). The tool measures patient perceptions of patient-centred care during the last visit with a family physician. PPPC showed significant correlations with better recovery from discomfort, alleviation of concerns, and better emotional health 2 months after the initial visit, and with use of fewer diagnostic tests and referrals (M. Stewart et al. 2000). Patients perception of patient-centred behaviours was strongly associated with patients satisfaction with information (Mallinger, Griggs, and Shields 2005). In a systematic review, the PPPC measures 3 of the 4 dimensions of the conceptual framework of PCC (Hudon et al. 2011) - disease and illness experience (4 items), whole person (1 item), and common ground (9 items).
Hudon, Catherine, Martin Fortin, Jeannie L. Haggerty, Mireille Lambert, and Marie-Eve Poitras. 2011. Measuring Patients Perceptions of Patient-Centred Care: A Systematic Review of Tools for Family Medicine. Annals of Family Medicine 9 (2): 155
PCCC or QoL?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.