The Components of Primary Care Instrument was used to measure 4 attributes of primary care: accumulated knowledge of the patient by the clinician, coordination of care, communication, and preference for first contact with their primary care clinician.
PCCC or QoL?
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This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
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This is the key domains that the measure is targeting.
Accumulated knowledge, coordination, communication, first contact preference
Type of measure
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The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PREM
Respondent
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The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
Patients
Copy of questionnaire
Provides link to refrence in atlas, but can't access article
Detailed Information
Year developed
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The year in which the measure was first published.
2005
Country developed in
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The main country[s] in which the measure was first developed.
US
Original publication
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The publication in which the measure was originally published.
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Multiple long term conditions
Main context tested in
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The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Outpatient, aged adults
Main countries used in
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The main countries in which the measure has been developed and used.
US
Target age
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e.g. Adults, Children, Elderly
Older people
Main uses of measure
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The context in which the measure is most often used – e.g. clinical trials; national surveys.
Designed to assess the effective delivery of primary care to patients with one or more chronic illnesses as this may be important in decreasing the level of hassles they experience as they interact with the health care delivery system.
Used in UK?
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Whether the instrument has been tested and validated within a UK healthcare context.
No
Impact
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A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
1.545454545
Language
English
Domains
Domain description
Accumulated knowledge, coordination, communication, first contact preference
100%
80%
60%
40%
20%
0%
3
1
1
3
2
12
4
Empowerment/activation
Self-management
Single point of contact
Care coordination within teams
Behaviour and communication skills
Information sharing
Medication
Psychometrics
Brief description
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A brief description of the initially reported psychometric properties of the measure.
Good face validity and reliability was demonstrated with a Cronbach's alpha of 0.94