The RMCC aims to quantify problems of relational and management continuity of care in patients with multiple long-term conditions. The questionnaire includes 16 items concerning relational and management continuity of care.
PCCC or QoL?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
This is the key domains that the measure is targeting.
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Multiple long term conditions
Main context tested in
The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Outpatient, aged adults
Main countries used in
The main countries in which the measure has been developed and used.
e.g. Adults, Children, Elderly
Main uses of measure
The context in which the measure is most often used – e.g. clinical trials; national surveys.
Designed to quantify problems of relational and management continuity of care in patients with multiple long-term conditions.
Used in UK?
Whether the instrument has been tested and validated within a UK healthcare context.
A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
The questionnaire items were developed by the study team, drawing on qualitative data. The items were broadly divided into a set of seven items concerning management continuity and ten items concerning relational continuity. A further four items concerned access and flexibility, such as gaining access to advice if urgent problems arise, as well as global satisfaction with the coordination of care. The responses to each item were coded using a Likert-type scale with four response options.
Care coordination within teams
Care coordination across teams
Generic care planning
Continuity of care
Shared decision making
Behaviour and communication skills
Knowledge of patient
A brief description of the initially reported psychometric properties of the measure.
This measure was tested with 1,125 participants. There was a response rate of 37%. There were 123 (11%) with no longterm
conditions, 225 (20%) with one, 284 (25%) with two, 218 (19%) with three and 275 (24%) with four or more.
Factor analysis confirmed two factors with seven items for management continuity (alpha 0.88) and nine items
for relational continuity (alpha 0.83).