SURE was developed so that there could be a shorter alternative to the Decisional Conflict Scale; a scale that allows health professionals to identify patients with decisional conflict (Legare, et al, 2010). The selection process for the four items within the measure was based on the core concepts of the Ottawa Decision Support Framework, which are reported as having relevancy at all stages of the decision making process; feeling uncertain, feeling informed, feeling clear about values and feeling supported in decision-making (OConnor, et al, 1998) The items were developed in French and English concurrently and were all positively framed.
PCCC or QoL?
This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Type of measure
The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.