A 20 item tool developed in the USA to assess patient satisfaction with the major aspects of primary care delivery (interpersonal communication, the doctors accumulated knowledge of the individual patient, patients preference to see their regular doctor and care coordination).
PCCC or QoL?
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This compendium contains patient-reported measures that are either designed to specifically measure aspects of Person Centred Co-Ordinated Care (P3C), or alternatively tools that are designed to measure some aspect of Quality of Life (QoL) or Health Related Quality of Life (hrQoL). All the measures in this compendium have been broadly categorised into one of those two concepts.
Person Centred Coordinated Care
Main Domains Measured
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This is the key domains that the measure is targeting.
Communication and patient prespectives on the delivery of primary care.
Type of measure
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The measures in this compendium can take a variety of forms. Generally, they will be either Patient Reported Outcome Measure (PROM) or Patient Reported Experience Measure (PREM). However, we have also included a few measures that are completed by proxy-individual (PROXY), which are useful in instances where the respondent cannot answer directly (e.g. dementia or end of life). Sometimes, these measures can even be a composite of these types, and target both experiences and outcomes – we have labelled these measures “PROEMs”.
PROEM
Respondent
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The person that fills in the questionnaire - e.g. patient, Health Care Professional, or proxy (normally a carer or family member)
The measures can be either generic or disease specific (e.g. Diabetes, Heart Failure)
Generic
Main context tested in
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The main context in which the measure has been developed and used (E.g. Hopital, General Practice etc).
Primary care
Main countries used in
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The main countries in which the measure has been developed and used.
Canada
Target age
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e.g. Adults, Children, Elderly
Adults
Main uses of measure
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The context in which the measure is most often used – e.g. clinical trials; national surveys.
To assess the delivery of aspects of primary care.
Used in UK?
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Whether the instrument has been tested and validated within a UK healthcare context.
No
Impact
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A crude indication of the impact of the measure on academia. This is the number of times the original publication has been cited on PubMed, divided/normalised to the years since publication.
3
Language
English
Domains
Domain description
An experience and outcome instrument focusing on communication and patient prespectives on the delivery of primary care.
Outcome domains: accumulated knowledge
Experience domains:
100%
80%
60%
40%
20%
0%
1
1
1
1
3
1
9
5
5
5
Empowerment/activation
Case manager/key person
Single point of contact
Care coordination within teams
Care coordination across teams
Continuity of care
Relational continuity
Behaviour and communication skills
Information sharing
Knowledge of patient
Psychometrics
Brief description
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A brief description of the initially reported psychometric properties of the measure.
Internal consistency: Cronbachs alpha ranging from .68 to .79
Content validity: A panel of experts evaluated the relevance of the items to the component they proposed to measure and assessed the items for clarity and conciseness
Predictive validity: CPCI was related with patient satisfaction. Interpersonal communication was associated with being more up to date on screening
http://www.ncbi.nlm.nih.gov/pubmed/9228916
http://www.ncbi.nlm.nih.gov/pubmed/9708580