PREOS‐PC |
Patient Reported Experiences and Outcomes of Safety in Primary Care questionnaire |
7 |
PREOS-PC explores patients’ experiences and perceptions of patient safety in general practices with the aim of eliciting patient‐centred recommendations for improving patient safety. |
Patient Experience |
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B-IPQ |
Brief Illness Perception Questionnaire |
9 |
The Brief Illness Perception Questionnaire (Brief IPQ) is a 9-item questionnaire designed to rapidly assess cognitive and emotional representations of illness. |
Patient Experience |
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PAID |
Problem Areas in Diabetes Scale |
20 |
Used to assess common problems in diabetes patients |
Quality of Life |
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POEM |
Patient-reported Outcome and Experience Measure |
8 |
The Glaucoma POEM is a novel eight-item questionnaire that was developed from the “National Glaucoma Think Tank” event in the United Kingdom in 2012. |
Acceptability of the treatment |
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MTBQ |
Multimorbidity Treatment Burden Questionnaire |
10 |
The Multimorbidity Treatment Burden Questionnaire (MTBQ) is a 10-item questionnaire designed to measure treatment burden (the effort of looking after one’s health) in patients with multimorbidity (multiple long-term conditions) in primary care. |
Multimorbidity |
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DDS |
Diabetes Distress Scale |
17 |
DDS focuses on distress involving clinicians and treatment, and motivational and behavioural problems of diabetes patients. |
Distress |
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HASMID |
Health and Self-Management in Diabetes |
8 |
A tool to measure doctors interpersonal skills during a consultation. |
self-management support |
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PDRQ-9 |
Patient Doctor Relation Questionnaire |
11 |
A tool to measure doctors interpersonal skills during consultation |
Communication |
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QUALITY OF END-OF-LIFE CARE (QEOLC-10): COMMON SOLUTION, PATIENT VERSION |
QEOLC-10 |
10 |
The common solution questionnaire provided here is composed of 10 items and may be used with patients who have been asked to evaluate the quality of end-of-life care. The 10 items were selected from a larger set of items using factor analytic approaches, and represent all five domains that we had identified previously as important to the quality end-of-life care. The items are the same for all respondent-types, making it easier to compare scores across respondents. The items provide a single score, derived as a simple mean of item values. |
Person Centred Coordinated Care |
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LIS |
Life Improver Score |
6 |
A tool for asthma patients that allows them to set their own health and wellbeing goals |
Person Centred Coordinated Care |
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QOC-13 |
Quality of Communication Questionnaire, Short (Self-Administered) |
13 |
The QOC is an instrument for assessing the quality of patient-doctor communication around end-of-life issues. This is a shortened version based on sub-scale validation and can be self-administered. |
Person Centred Coordinated Care |
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PEQ |
Patient Experience Questionnaire (NHS survey) |
19 |
A longer version of the PPE-15 used as an NHS survey tool |
Person Centred Coordinated Care |
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PEQ |
Patient Experience Questionnaire (Steine) |
18 |
The Patient Experience Questionnaire is a free to use, reliable, validated measure of patient experience. It is an 18 item self-reported measure of how a patient has felt about their consultation. It should be used only in one-on-one consultation circumstances. The items are not all suitable to domiciliary consultations. If you work in an inpatient setting the PPE-15 is probably more suitable: It measures patient experience along the domains: communication; emotions; short-term outcomes; barriers; and relations with auxiliary staff. The PEQ can be used to gain feedback on the practitioner-patient relationship across these domains. While it was developed for use by doctors, the questions are generic enough that it could be easily adapted to be used by other health professionals (e.g., change occurrences of the word |
Person Centred Coordinated Care |
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LTCQ |
Long-Term Conditions Questionnaire |
20 |
Patient-reported outcome measurefor use among people with single or multiple LTCs |
Person Centred Coordinated Care |
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MYMOP |
Measure Yourself Medical Outcome Profile |
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A brief indvidualised outcome questionnaire. Whilst problem specific, it also includes items on general wellbeing and is relevant across physical, emotional and social symptoms .Practitioners found that MYMOP was practical and applicable to all patients with symptoms and that its use increased their awareness of patients' priorities (Paterson, 1996). |
IPROM |
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PGI |
Patient Generated Index / Modified Patient Generated Index |
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Although it is a quality of life measure, the PGI does allows the individual to select personally relevant areas for improvement through the application of a point scale. Various adaptations have been made to suit a variety of patient groups. It has a well-developed conceptual model, and the modified version, in particular, is able to detect change. |
IPROM |
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Talking Mats |
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Although not specific to goal setting, Talking Mats have been used effectively with those with cognitive impairment to facilitate participation in discussions that they may have difficulty in engaging in otherwise |
IPROM |
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GAS |
Goal Attainment Scaling |
5 |
The GAS is a personalised outcome measure that progress towards achieving individualised goals. Due to it's personalised nature, it is sensitive to change, and it also has acceptable levels of reliability and validity. It is probably more complicated to score than standard questionnaire measures, especially for calculating change scores. Originally used in mental health settings, but has also been undertaken in elderly care settings and as a goal setting facilitator for chronic pain and in cognitive and amputee rehabilitation. A considerable literature base suggests its usefulness within a person centred decision making process. |
IPROM |
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COPM |
Canadian Occupational Performance Measure |
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Deemed reliable and clinically useful for occupational therapist practitioners. It offers a broad focus on occupational performance across a range of areas including self-care, leisure and productivity, and takes into account personal life circumstances. It has been used with a variety of client groups, although there is some evidence that it is not suitable for those with low empowerment/ self-management skills. |
IPROM |
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YFHS-WHO+ |
Youth Friendly Health Services Questionnaire (YFHS-WHO+) |
49 |
|
Person Centred Coordinated Care |
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WOMBAT |
Work Observation Method by Activity Timing (WOMBAT) |
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Person Centred Coordinated Care |
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UK General Medical Council Patient Questionnaire |
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Person Centred Coordinated Care |
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Tucker Culturally Sensitive Health Care Clinic Environment Inventory - Patient Form |
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Person Centred Coordinated Care |
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Toronto Empathy Questionnaire |
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Person Centred Coordinated Care |
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TURNIP |
Tool for Understanding Residents' Needs as Individual Persons (TURNIP) |
39 |
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Person Centred Coordinated Care |
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Tasks of Medicine Scale |
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Person Centred Coordinated Care |
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SHEP |
Survey of Healthcare Experiences of Patients (SHEP) |
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The SHEP survey has provided a useful tool for evaluating and improving satisfaction among its VHA veteran users. The Survey of Healthcare Experiences of Patients (SHEP),
managed by the VHA Office of Quality and Performance
(OQP), regularly solicits patient responses related to a specific and most recent episode of either outpatient or inpatient
care. |
Person Centred Coordinated Care |
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SCEQ |
Stroke Carer Experience Questionnaire (SCEQ) |
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Person Centred Coordinated Care |
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SCCAP |
Siminoff Communication Content and Affect Programme (SCCAP) |
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Person Centred Coordinated Care |
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Shared Decision-Making Inventory |
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Person Centred Coordinated Care |
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SDM(MASS) |
Shared Decision Making - Meeting its concept's Assumptions (SDM(MASS)) |
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Person Centred Coordinated Care |
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Shared Care Instrument |
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Person Centred Coordinated Care |
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RAIS |
Roter Interaction Analysis System (RAIS) |
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Person Centred Coordinated Care |
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RCQ |
Role Category Questionnaire (RCQ) |
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Person Centred Coordinated Care |
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Resources and Support for Chronic Illness Self-management Scale |
17 |
|
Person Centred Coordinated Care |
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QUOTE |
QUOTE-questionnaires (Quality Of care Through the patients' Eyes) |
7-domains |
|
Person Centred Coordinated Care |
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QSH |
Questionnaire for satisfaction of hospitalised (QSH) patients |
45 |
|
Person Centred Coordinated Care |
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Professional Practice Environment Questionnaire |
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Person Centred Coordinated Care |
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PCAT-patient |
Primary Care Assessment Tool (PCAT - patient version) |
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Person Centred Coordinated Care |
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PCAS |
Primary Care Assessment Survey (PCAS) |
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Person Centred Coordinated Care |
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PACS |
Primary Care Assessment Survey (PACS) |
9 |
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Person Centred Coordinated Care |
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Practices in Self-management Support |
25 |
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Person Centred Coordinated Care |
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Physician Trust in the Patient |
12 |
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Person Centred Coordinated Care |
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Personhood Questionnaire |
17 |
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Person Centred Coordinated Care |
View Detail
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Personhood in Dementia Questionnaire |
20 |
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Person Centred Coordinated Care |
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Person-centred staff survey |
50 |
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Person Centred Coordinated Care |
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PCCCS |
Person-Centred Communication Coding System (PCCCS) |
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Person Centred Coordinated Care |
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POPAC |
Person-centred care of older people with cognitive impairment in acute care scale (POPAC) |
15 |
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Person Centred Coordinated Care |
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Personal Identity Threat Survey |
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Person Centred Coordinated Care |
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Patient's Assessment of Quality Scale |
90 |
|
Person Centred Coordinated Care |
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Patient-Practitioner Orientation Scale |
18 |
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Person Centred Coordinated Care |
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Patient-Family-Centred Care Survey |
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Person Centred Coordinated Care |
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PDIS |
Patient-Doctor Interaction Scale (PDIS) |
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The Patient-Doctor Interaction Scale (PDIS) can be used to assess the level of satisfaction that a patient feels for a recent physician encounter. It is a versatile instrument that can be administered in several ways and provides reliable feedback. |
Person Centred Coordinated Care |
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PCQ |
Patient-centredness Questionnaire (PCQ) |
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Person Centred Coordinated Care |
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Patient-centred Care Scale |
16 |
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Person Centred Coordinated Care |
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Patient Satisfaction Scale |
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Person Centred Coordinated Care |
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PSQ |
Patient Satisfaction Questionnaire (PSQ) |
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Person Centred Coordinated Care |
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PMOS |
Patient Measure of Safety (PMOS) |
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Person Centred Coordinated Care |
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PEECH |
Patient Evaluation of Emotional Care during Hospitalisation (PEECH) |
48 |
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Person Centred Coordinated Care |
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PDI |
Patient Dignity Inventory (PDI) |
22 |
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Person Centred Coordinated Care |
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Patient Activation Measure for Customer Quality |
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Person Centred Coordinated Care |
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PCOMS |
Partners for Change Outcome Management System (PCOMS) |
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Person Centred Coordinated Care |
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Parents Perceptions of Continuity Scale |
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Person Centred Coordinated Care |
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PACCI |
Paediatric Asthma Control and Communication Instrument (PACCI) |
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Person Centred Coordinated Care |
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Organisational Values Questionnaire |
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Person Centred Coordinated Care |
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Nursing Activities for Communication With Families |
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Person Centred Coordinated Care |
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NQCPQ |
Nurse Quality of Communication with Patient Questionnaire (NQCPQ) |
6 |
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Person Centred Coordinated Care |
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NHS National Adult Inpatient Survey |
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Person Centred Coordinated Care |
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Newcastle Satisfaction with Nursing Scale |
19 |
An instrument for quality assessments of nursing care |
Person Centred Coordinated Care |
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NRC Picker |
National Research Corporation Picker Paediatric Inpatient Survey (NRC Picker) |
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Person Centred Coordinated Care |
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MISS-21 |
Medical Interview Satisfaction Scale (MISS-21) |
21 |
The 29-item 'Medical Interview Satisfaction Scale' was developed in the USA to assess patient satisfaction with individual doctor-patient consultations. |
Person Centred Coordinated Care |
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MEPS |
Medical Expenditure Panel Survey (MEPS) |
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Person Centred Coordinated Care |
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Medical Communications Behaviour System |
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Person Centred Coordinated Care |
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Measure of Processes of Care for Service Providers |
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Person Centred Coordinated Care |
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MPOC-56 |
Measure of Processes of Care 56-item version |
56 |
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Person Centred Coordinated Care |
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MPOC-20 |
Measure of Processes of Care 20-item version |
20 |
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Person Centred Coordinated Care |
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MPCC |
Measure of Patient-Centred Communication (MPCC) |
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Person Centred Coordinated Care |
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MAAS-GP |
MAAS History-taking and Advice Checklist GP (MAAS-GP) |
68 |
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Person Centred Coordinated Care |
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JSE |
Jefferson Scale of (Physician) Empathy (JSE) |
20 |
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Person Centred Coordinated Care |
View Detail
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Irish National Perception of Quality of Care Survey |
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Person Centred Coordinated Care |
View Detail
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IRI |
Interpersonal Reactivity Index (IRI) |
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Person Centred Coordinated Care |
View Detail
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IPC |
Interpersonal Processes of Care Survey |
29 |
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Person Centred Coordinated Care |
View Detail
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ICAS |
Interpersonal Communication Assessment Scale (ICAS) |
23 |
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Person Centred Coordinated Care |
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Inpatient Experience Survey |
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Person Centred Coordinated Care |
View Detail
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Informed Decision Making tool |
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Person Centred Coordinated Care |
View Detail
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Individualised Care Inventory |
35 |
|
Person Centred Coordinated Care |
View Detail
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ICI |
Individual Care Instrument (ICI) - patient |
3 domains |
|
Person Centred Coordinated Care |
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IPQ |
Improving Practice Questionnaire (IPQ) |
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Person Centred Coordinated Care |
View Detail
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Hong Kong Inpatient Experience Questionnaire |
54 |
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Person Centred Coordinated Care |
View Detail
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Hogan Empathy Scale |
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Person Centred Coordinated Care |
View Detail
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Health Information Wants Questionnaire |
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Person Centred Coordinated Care |
View Detail
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Global Rating Scale |
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Person Centred Coordinated Care |
View Detail
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General Practice Patient Survey - England |
45 |
|
Person Centred Coordinated Care |
View Detail
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GPAS |
General Practice Assessment Survey (GPAS / GPAQ) |
53 items in 7 domains |
|
Person Centred Coordinated Care |
View Detail
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Family-Centred Care Self-Assessment Inventory |
7 domains |
|
Person Centred Coordinated Care |
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Family-Centred Care Questionnaire |
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Person Centred Coordinated Care |
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Family Empowerment Scale |
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Person Centred Coordinated Care |
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EPOC |
Explicit Professional Oral Communication (EPOC) |
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Person Centred Coordinated Care |
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EUROPEP |
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Person Centred Coordinated Care |
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Euro Health Consumer Index |
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Person Centred Coordinated Care |
View Detail
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ECQ |
ENDOCARE questionnaire (ECQ) |
10 domains |
|
Person Centred Coordinated Care |
View Detail
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EQ |
Empathy Quotient (EQ) |
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Person Centred Coordinated Care |
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Emotional Tone Rating Scale |
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Person Centred Coordinated Care |
View Detail
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Emotional Intimacy Scale |
5 |
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Person Centred Coordinated Care |
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EPCS |
Elderly Resident-Perceived Caring Scale (EPCS) |
14 |
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Person Centred Coordinated Care |
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ELICS |
Effective Listening and Interactive Communication Scale (ELICS) |
24 |
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Person Centred Coordinated Care |
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Dialogue - consultation satisfaction questionnaire |
18 |
Adapted version of the consultation satisfaction questionnaire for use with nurses, doctors and HPs |
Person Centred Coordinated Care |
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Decision-making Involvement Scale |
20 |
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Person Centred Coordinated Care |
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Decisional Balance for Patient Choice in Substance Abuse Treatment |
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Person Centred Coordinated Care |
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Davis Observation Code |
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Person Centred Coordinated Care |
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CQ-index |
Consumer Quality Index |
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Person Centred Coordinated Care |
View Detail
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CAHPS |
Consumer Assessment of Healthcare Providers and Systems (CAHPS and CAHPS Hospital) |
27 |
The Consumer Assessment of Healthcare Providers and Systems (CAHPS) |
Person Centred Coordinated Care |
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CSQ |
Consultation Satisfaction Questionnaire |
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Person Centred Coordinated Care |
View Detail
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CQI |
Consultation Quality Index |
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Person Centred Coordinated Care |
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Compassion Scale |
10 |
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Person Centred Coordinated Care |
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CSM |
Communicator Styles Measure |
40 |
|
Person Centred Coordinated Care |
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CSAS |
Communication Skills Attitude Scale |
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Person Centred Coordinated Care |
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CS-PAM |
Clinician Support for Patient Activation Measure |
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Person Centred Coordinated Care |
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Client Satisfaction Survey |
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Person Centred Coordinated Care |
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Client Generated Index |
6 steps |
The CGI was developed to measure outcomes in community health settings. |
Person Centred Coordinated Care |
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Caring Behaviours Inventory |
24 |
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Person Centred Coordinated Care |
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Caring Behaviour Measurement |
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Person Centred Coordinated Care |
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CARES observational tool |
16 |
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Person Centred Coordinated Care |
View Detail
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Carer HospSat |
Carer Hospital Satisfaction Questionnaire |
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Person Centred Coordinated Care |
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Carer Experience Scale |
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Person Centred Coordinated Care |
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CEQUEL |
Caregiver Evaluation of Quality of End-of-Life Care |
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Person Centred Coordinated Care |
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Cardiovascular population scale |
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Person Centred Coordinated Care |
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Benchmarking Person-centred Care |
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Person Centred Coordinated Care |
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Barriers to Providing Family-Centred Care |
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Person Centred Coordinated Care |
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BTMS |
Baker and Taylor Measurement Scale |
3 domains |
The Baker & Taylor Measurement Scale (BTMS) was selected to measure patient satisfaction
and quality of care as perceived by the patient during their hospital stay |
Person Centred Coordinated Care |
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PCRS |
Assessment of Primary Care Resources and Supports for Chronic Disease Self-Management (PCRS) |
16 |
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Person Centred Coordinated Care |
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ACIC |
Assessment Chronic Illness Care |
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Person Centred Coordinated Care |
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Artefact of Culture Change Tool |
6 domains |
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Person Centred Coordinated Care |
View Detail
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Ambulatory Care Experiences Survey |
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Person Centred Coordinated Care |
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ACQ |
Affective Communication Questionnaire |
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Person Centred Coordinated Care |
View Detail
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4 Habits Coding Scheme |
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Person Centred Coordinated Care |
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ICE-CAP-A |
Investigating Choice Experiments Capability Measure for Adults (ICECAP-A) |
5 |
The ICE-CAP-A is a capability measure for the general adult population. Unlike the EQ-5D (which focuses on health), the ICA-CAP-A focuses on wellbeing defined in a broader sense and may therefore be a more appropriate measure for mental illness. It was developed in the UK. |
Quality of Life |
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Inspire |
Inspire |
20+7 |
The Inspire is a 20 item measure of Recovery and has an additional 7 items scale that rates therapeutic relationship. There is also a short version (the Brief Inspire) that focuses more on measuring the quality of the therapeutic relationship than recovery. It was developed in the UK and although a relatively new measure, appears to have acceptable psychometric properties. |
Person Centred Coordinated Care |
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SISR |
Self-Identifies Stage of Recovery |
9 |
The SISR is a 9 item measure of recovery. The measure has not yet demonstrated adequate psychometric properties. |
Person Centred Coordinated Care |
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Recovery Star |
10 |
The Recovery Start is a 10 item recovery measure for adults managing their mental health and recovering from mental illness. Unlike questionnaire measures, it is presented in diagram form and is completed jointly be service user and key worker. It has acceptable psychometric properties with regard to content validity and reliability. There is a relatively small cost involved in purchasing a license to use the Recovery Star. |
Person Centred Coordinated Care |
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|
RPI |
Recovery Process Inventory |
22 |
The RPI is a 22 item measure of recovery that covers all 5 aspects of recovery. The measure has acceptable psychometric properties with regard to content validity and reliability. |
Person Centred Coordinated Care |
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|
RMQ |
Recovery Markers Questionnaire |
28 |
The RMQ is a 28 item measure of recovery. The measure has not yet demonstrated adequate psychometric properties. |
Person Centred Coordinated Care |
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RAS |
Recovery Assessment Scale |
41 |
The RAS is a 41 items recovery measure that covers all 5 elements of recovery (connectedness, hope, identity, meaning and purpose, and empowerment). It has acceptable psychometric properties with regard to content and construct validity and reliability. It compared favourably to other measures in a systematic review (Shanks et al, 2013) and is the most widely published measure. |
Person Centred Coordinated Care |
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QPR |
Process of Recovery Questionnaire |
22 |
The QPR is a 22 item recovery measure that covers all 5 elements of recovery (connectedness, hope, identity, meaning and purpose, and empowerment). The measure has been tested in the UK and has adequate psychometric properties for content and construct validity and reliability. There is also a 15 item version which has acceptable psychometric properties and has been reported to be more robust that the longer version. |
Person Centred Coordinated Care |
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PRI |
Psychosis Recovery Inventory |
25 |
This is a 25 item measure of recovery. It has not yet been tested within the UK population. |
Person Centred Coordinated Care |
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MHRM |
Mental Health Recovery Measure |
41 |
The MHRM is a 41 measure of recovery. The measure is longer than a number of the other measures and has not yet demonstrated adequate psychometric properties. |
Person Centred Coordinated Care |
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MARS |
Maryland Assessment of Recovery |
25 |
A 25 item recovery measure that covers all 5 elements of recovery (connectedness, hope, identity, meaning and purpose, and empowerment). The measure had adequate psychometric properties for content validity and reliability. |
Person Centred Coordinated Care |
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IMR |
Illness Management and Recovery Scales |
15 |
The IMR is a 15 item scale that covers 2 of the 5 aspects of recovery (connectedness and empowerment). The scale has adequate psychometric properties for content validity and reliability. |
Person Centred Coordinated Care |
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HoNoS |
Health of the Nation outcome Scales |
12 |
The HoNoS is a routinely used outcome measure in mental health services that measures behaviour, impairment, symptoms and functioning. |
Other |
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WEMWBS |
Warwick-Edinburgh Mental Well-Being Scale |
14 |
The Warwick-Edinburgh Mental Well-being Scale (WEMWBS) comprises 14 items that relate to an individual |
Other |
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BAI |
Beck Anxiety Inventory |
21 |
The Beck Anxiety Inventory is one of the most popular screening and outcome research instruments for measuring the construct of anxiety. |
Other |
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WSAS |
Work and Social Adjustment Scale |
5 |
The work and social adjustment scale examines patients' perspectives concerning impaired functioning. |
Other |
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GAD-7 |
Generalised Anxiety Disorder |
7 |
Symptom based Anxiety questionnaire, widely used in UK (e.g. in IAPT service). |
Other |
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CORE-10 |
Clinical Outcomes for Routine Evaluation - 10 item |
10 |
10 item version of the CORE. CORE-10 is a short and easy-to-use assessment measure for common presentations of psychological distress in UK primary care mental health settings. |
Other |
View Detail
|
CORE-OM |
Clinical Outcomes for Routine Evaluation - Outcome Measure |
34 |
A measure of psychological distress that includes both depression and anxiety symptoms. Other subscales are well-being, functioning, and risk. Developed and validated in the UK. The measure fits on two sides of A4 and includes 34 simply worded items all answered on the same five-point scale ranging from |
Other |
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PHQ-9 |
Patient Health Questionnaire |
9 |
Symptom based Depression questionnaire, widely used in UK (e.g. in IAPT service), good evidence of diagnostic and discriminant validity, and used to evaluate services. Not intended for use in severe mood disorder. |
Other |
View Detail
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HADS |
Hospital Anxiety and Depression Scale |
10 |
Screening instrument for depression and anxiety in non-psychiatry settings, validated in primary care samples. |
Other |
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|
BDI-II |
Beck Depression Inventory |
20 |
Used to identify depression and measure the severity of depression symptoms. |
Other |
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|
QUAL-E |
QUAL-E |
26 |
The QUAL-E is a brief measure of quality of life at the end of life. |
Person Centred Coordinated Care |
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|
MQOL |
McGill Quality of Life Questionnaire |
16 |
A Quality of Life Questionnaire in the palliative care setting. Well used in the USA, it was recommended as the scale with the best overall psychometric properties for QoL in palliative care in a previous systematic review - http://www.ncbi.nlm.nih.gov/pubmed/19843620 |
Person Centred Coordinated Care |
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EOLD-CAD |
Comfort Assessment in Dying with Dementia |
14 |
Satisfaction with Care at the End-of-Life in Dementia (EOLD-SWC) & Comfort Assessment in Dying with Dementia (EOLD-CAD) are a pair of tools for EoL care in dementia. EOLD-CAD has four subscales: Physical Distress, Dying Symptoms, Emotional Distress, and Well Being. Both scales have been deemed as being the most valid and internally consistent for end-of-life in dementia in systematic review - http://www.ncbi.nlm.nih.gov/pubmed/21814875. Furthermore, this set of scales was recently signposted in a UK a publication of implementation of UK national policies - http://www.ncbi.nlm.nih.gov/pubmed/?term=26481400 |
Person Centred Coordinated Care |
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EOLD-SWC |
Satisfaction with Care at the End-of-Life in Dementia |
10 |
Satisfaction with Care at the End-of-Life in Dementia (EOLD-SWC) & Comfort Assessment in Dying with Dementia (EOLD-CAD) are a pair of tools for EoL care in dementia. Both scales have been deemed as being the most valid and internally consistent for end-of-life in dementia in systematic review - http://www.ncbi.nlm.nih.gov/pubmed/21814875. Furthermore, this set of scales was recently signposted in a UK a publication of implementation of UK national policies - http://www.ncbi.nlm.nih.gov/pubmed/?term=26481400 |
Person Centred Coordinated Care |
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FPCS |
Family Perception of Care Scale |
25 |
A tool developed exclusively for long-term care facilities, measuring resident care, family support, communication, and rooming. It was deemed as having excellent content validity, covering all essential domains of palliative care, is simple to administer and scored well in systematic review of psychometric properties - http://www.ncbi.nlm.nih.gov/pubmed/20817748 |
Person Centred Coordinated Care |
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STAS |
Support Team Assessment Schedule |
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The STAS was developed as a standardized measure to evaluate the work of palliative care support teams. Its 17 items can be rated from 0 (best) to 4 (worst) by a patients professional caregiver. These items measure patient symptoms, anxiety and insight, family anxiety and insight, quality of communication with health care professionals and carers, and the need for practical support. Although still well used in Asia, it has largely been superseded by the POS in other regions. |
Person Centred Coordinated Care |
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POS |
Palliative Care Outcome Scale |
12 - Patient version |
The POS was developed following the success of its predecessor, the STAS. This measure was designed for use with advanced cancer patients and evaluates similar outcomes to the STAS, but with an additional patient-reported element. There are other versions available for healthcare professionals and carers. This family of tools measures patients' physical symptoms, psychological, emotional and spiritual, information and support needs. They are validated instruments that can be used in clinical care, audit, research and training. It is among the top five outcome measures used in research as well as clinical care and audit in Europe, but is used worldwide and has been translated into numerous languages, and is increasingly being used as an evaluation tool, in addition to assessing patients symptoms and needs. There is a growing body of evidence for the validity of the POS and its acceptability among patients, caregivers, and health professionals. They are largely considered as a valid and reliable tools - http://www.ncbi.nlm.nih.gov/pubmed/26335764
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Person Centred Coordinated Care |
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FEHC |
Family Evaluation of
Hospice Care
|
61 |
The Family Evaluation of Hospice Care (FEHC) survey is a 61-item questionnaire that surveys family members about care provided to the decedent by the hospice. |
Person Centred Coordinated Care |
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QODD |
QODD: SIGNIFICANT OTHER AFTER DEATH INTERVIEW (Version 1.0) |
31 |
The QODD was constructed from concepts elicited from literature review, qualitative interviews with persons with and without chronic and terminal conditions, and consideration of desirable measurement properties. Quality of dying and death is defined as the degree to which a person's preferences for dying and the moment of death agree with observations of how the person actually died, as reported by others. There are six conceptual domains: symptoms and personal care, preparation for death, moment of death, family, treatment preferences, and whole person concerns. It is one of the most well used and best domain coverage of EoL tools. |
Person Centred Coordinated Care |
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ADBFI |
After-death Bereaved Family
Member Interview
|
Tool |
A survey administered to a proxy individual to measure quality of care at the end of life from the perspective of family members. It is based on a patient-focused, family-centred approach that examines whether end-of-life care meets the expectations and needs of the dying person and their family members. The instrument investigates a comprehensive coverage of domains, including whether physical comfort and emotional support are provided to the dying patient, whether shared decision making is promoted, if care is focused on the individual, whether the needs of family members are met and if satisfactory coordination of care is achieved. This was the most cited of measures in a recent systematic review for measuring EoL experience - http://www.ncbi.nlm.nih.gov/pubmed/25543110. It covers a broad variety of domains and has been used in the widest contexts, including nursing homes, hospitals, cancer centres and outpatient services for diseases including cancer and dementia. |
Person Centred Coordinated Care |
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ZBI-SF |
Zarit Burden Interview (Short Form) |
12 |
A tool to measure the impact of dementia caregiving on the carer. |
Person Centred Coordinated Care |
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CRA |
Caregiver Reaction Assessment |
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A multidimensional instrument to assess the reactions of family members caring for elderly persons with physical impairments, Alzheimer's disease, and cancer. |
Person Centred Coordinated Care |
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ALGA-BC |
ALGA-Breast Cancer |
29 |
This a multidimensional questionnaire that has been designed with the explicit goals of delivering personalised and patient centred-medicine. It assesses the breast cancer patient's physical and mental characteristics in order to provide physicians, prior to the consultation, with a patient's profile that is supposed to facilitate subsequent communication, interaction, and information delivery between the doctor and the patient. |
Person Centred Coordinated Care |
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QLACS |
Quality of Life in Adult Cancer Survivors |
47 |
The QLACS is a measure specifically focusing on the quality of life of long-term cancer survivors . It is based on the multidimensional cancer-related quality of life model, which takes into account both functioning and patient satisfaction with functioning. Long-term cancer survivorship has been defined as the period exceeding diagnosis for at least 5 years. It has been used in a large UK national follow up study of cancer survivors :http://www.ncbi.nlm.nih.gov/pubmed/22048028 |
Quality of Life |
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IOCv2 |
Impact of Cancer Scale v2 |
37+10 |
The IOC was developed specifically to measure unique and multidimensional aspects of long-term cancer survivorship focusing almost exclusively on problems, issues, and changes that long-term survivors ascribe to their cancer experience. Cancer survivorship is defined as a period of 5 years or more post-diagnosis.
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Quality of Life |
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CHQ |
Chronic Heart Failure Questionnaire |
16 |
A tool for measuring longitudinal change over time within persons with HF. Whilst the KCCQ and MLHFQ are more widely used and better validated, the CHFQ is more sensitive, has a well-defined conceptual model, and allows patients to select the most important activities for them. However, it requires an interviewer and is time consuming. |
Quality of Life |
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LIhFE |
Minnesota Living with Heart Failure Questionnaire |
13 |
The most widely used instrument for HRQoL in Heart Failure, targeting the extent to which HF prevents patients from living the way they want to. |
Quality of Life |
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KCCQ |
Kansas City Cardiomyopathy Questionnaire |
23 |
A measure for health-related quality of life in Heart Failure. The second most commonly utilised QoL measure for HF after the MLHFQ, the KCCQ was more recently designed, covers more domains and may have better psychometric properties. |
Quality of Life |
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MCQ |
Medical Care Questionnaire |
15 |
An adaption of the Components of Primary Care Index (CPCI) for oncology outpatients, aimed to provide a valid perspective on patients' experiences of communicating with doctors and their perceptions of the continuity and coordination of their cancer care. It is one of the few cancer-specific care experience measures that has been developed in a UK context. |
Person Centred Coordinated Care |
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FACT-G |
Functional Assessment of Cancer Therapy - General |
27 |
The Fact is a general cancer quality-of-life (QL) measure for evaluating patients receiving cancer treatment. It covers four domains: Physical, Social, Emotional, and Functional wellbeing. |
Quality of Life |
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EORTC-QLQ 30 |
European Organization for Research and Treatment of Cancer Quality of Life Questionnaire |
30 |
Cancer-specific core questionnaire for use in relation to various cancers. May be used in conjunction with the cancer specific modules from the same provider. |
Quality of Life |
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Neuro-QoL |
Neuro-QoL health-related quality of life measurement system |
|
The NeuoQoL measure was recently co-designed with patients and carers, measuring aspects of physical, mental, and social health. It possesses characteristics such as brevity, flexibility in administration, and suitability, for cross-disease comparisons that may be advantageous to users in a variety of settings. The project is targeting 5 adult conditions (stroke, multiple sclerosis, Parkinsons disease, epilepsy and ALS) and 2 paediatric conditions (epilepsy and muscular dystrophies). |
Quality of Life |
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SCOPA-PS |
Scales for Outcomes in Parkinson's disease-PsychoSocial questionnaire |
11 |
A short questionnaire for psychosocial functioning in patients with Parkinson's Disease. |
Quality of Life |
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PDQL |
Parkinsons Disease Quality of Life Questionnaire |
21 |
Internationally the most frequently used PD HRQoL instrument. The PDGL was developed based on the experience of patients with Parkinson's disease and of neurologists; medical literature on the problems of patients with Parkinson's disease; and other quality of life questionnaires. |
Health-Related Quality of Life |
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PDQ-8 |
Short-Form Parkinsons Disease Questionnaire |
8 |
A short-form version of the most thoroughly tested and validated Parkinson's HRQoL instrument. It provides a single index measure of overall health status is acceptable or desirable. |
Health-Related Quality of Life |
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COAST |
Communication Outcome after Stroke |
20 |
COAST is a patient-centred, practical and reliable measure that can be used to assess self-perceived communication effectiveness for people with stroke, developed in the UK. |
Person Centred Coordinated Care |
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SSEQ |
The Stroke Self-Efficacy Questionnaire |
13 |
A tool to measure self-efficacy judgements in specific domains of functioning relevant to individuals following stroke. |
Health-Related Quality of Life |
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SIPSO |
The Subjective Index of Physical and Social Outcome |
10 |
A valid and reliable assessment of an individual's ability to reintegrate to a 'normal' lifestyle, including social outcomes. A short scale that has been well-validated and used in the UK context for assessing physical and social outcomes for stroke patients. |
Health-Related Quality of Life |
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SIS |
Stroke Impact Scale |
8 |
A Short-Form version of the SIS that can accurately provide the disability score and overall index score similar to the longer version, but with considerable brevity. |
Health-Related Quality of Life |
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SCI-R |
Self-Care Inventory Revised |
15 |
The SCI-R evaluates individuals perceptions of how well they engage with their individualised treatment recommendations. It is revised version of the SCI, modified to reflect current diabetes practice, with reasonable psychometrics that has been validated in a UK context |
Person Centred Coordinated Care |
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MMAS-8 |
Morisky Medication Adherence Scale |
4 |
A brief, commonly used, easily administered questionnaire to assess medication adherence in chronic diseases such as diabetes, hypertension, asthma, or heart failure. |
Person Centred Coordinated Care |
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MARS |
Medication Adherence Report Scale |
5 |
Medication taking in diabetes.
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Person Centred Coordinated Care |
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DCP |
Diabetes Care Profile |
8 |
The DCP is a standardized instrument for assessing social and psychological factors related to diabetes and its treatment.
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Person Centred Coordinated Care |
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SDSCA |
Summary of Diabetes Self-Care Activities |
11 |
A multidimensional tool for the assessment of self-management in diabetes. The most widely used and validated tool for self-management in diabetes. SDSCA is a brief self-report questionnaire of diabetes self-management that includes items assessing aspects of the diabetes regimen. |
Person Centred Coordinated Care |
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DIAB-Q |
Diabetes Intention, Attitude, and Behavior Questionnaire |
17 |
A brief questionnaire to measure physical activity, dietary control, maintenance of a healthy weight, and psychological antecedents. It is a new measure for intention to self-care in diabetes, with potential utility ion identifying optimal type-2-diabetes management approaches that incorporated individual beliefs and preferences. |
Person Centred Coordinated Care |
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DHP-18 |
Diabetes Health Profile (18 item version) |
18 |
A tool to assess the psychological impact of living with type 1 diabetes. DHP is a Diabetes HrQoL measure that is short, well-translated, well used in the UK context and has been independently assessed as having well-validated psychometric properties. |
Health-Related Quality of Life |
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DHP-1 |
Diabetes Health Profile (32 Item version) |
32 |
A tool to assess the psychological impact of living with type 1 diabetes. DHP is a Diabetes HrQoL measure that is short, well-translated, well used in the UK context and has been independently assessed as having well-validated psychometric properties. |
Health-Related Quality of Life |
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ADDQoL-19 |
Audit of Diabetes Dependent QoL (19 item version) |
19 |
ADDQoL is a Diabetes HrQoL measure that is short, well-translated, well used in the UK context and has been independently assessed as having well-validated psychometric properties. |
Health-Related Quality of Life |
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ADDQoL-14 |
Audit of Diabetes Dependent QoL (14 Item version) |
14 |
The 14-item version has been created in response to an immediate requirement for an (adapted) English version of the ADDQoL19 in a shorter form. It was designed for use by those people who, for various reasons, might find the longer version too arduous (e.g. low literacy, vision problems). ADDQoL is a Diabetes HrQoL measure that is short, well-translated, well used in the UK context and has been independently assessed as having well-validated psychometric properties. |
Health-Related Quality of Life |
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DQOL |
Dementia Quality of Life |
29 |
DQOL was developed through an involved process (an iterative conceptual and statistical process that included a literature review and consultation with expert panels composed of people with dementia, caregivers, and professional care providers),and the developers concluded that people with mild to moderate dementia can be considered to be good informants of their own subjective states, thus paving the way for peoples own, rather than proxy, measures of QoL in dementia. |
Quality of Life |
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QOL-AD |
Quality of Life in Alzheimers Disease |
13 |
QOL-AD is a brief, 13-item self-report (and 15-item caregiver-report) measure. It is the most commonly used dementia-specific measure of QoL, and includes assessment of physical health, mental health, social and functional domains,
and an overall QoL score. It is the most common measure of dementia-specific QoL, as it is brief (13 items), has evidence of psychometric acceptability, sensitivity to psychosocial interventions, and can be used with people with poor cognitive scores (as low as 3 on the Mini Mental State Examination) |
Quality of Life |
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VR-36 |
Veterans RAND 36 |
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A general measure developed in the VHS (Vetrans health survey) for measuring the physical and psychologic well-being of the patient. The VR-36 eight domains include physical functioning, role limitations due to physical problems, bodily pain, general health perceptions, vitality, social functioning, role limitations due to emotional problems and mental health. |
Quality of Life |
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UCLALS |
The UCLA Loneliness Scale |
3 |
A short version of a longer 20-item tool, this tool was developed for service providers, it is short and academically rigorous, with a simple scoring system. However, it was developed in the USA with students, although the 3-item version has been tested with older people. Shown to be a robust measure of loneliness in self-administered questionnaires and telephone interviews. |
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DJGLS |
De Jong Gierveld Loneliness Scale |
6 |
The De Jong Gierveld Loneliness Scale is considered by many as the gold standard for measuring loneliness, and has been used in international contexts. It was initially developed in the Netherlands for research use in large surveys, this scale has been adapted for evaluating interventions. It is an academically rigorous tool that distinguishes between different causes of loneliness. It is a 6 item scale with 3 statements made about |
Person Centred Coordinated Care |
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CELMT |
The Campaign to End Loneliness Measurement Tool |
3 |
A short and sensitively-worded tool that is easy to use, this tool was developed over the course of 2014 by the Campaign to End Loneliness in partnership with over 50 older people, service providers, commissioners and housing associations. Three focus groups were held with older people in Bristol and London. These were followed by three design workshops, during which the organisations and older people present created an outcome |
Person Centred Coordinated Care |
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EASY-Care |
Elderly Assessment System (EASY-Care) |
85 |
Elderly Assessment System (EASY-Care) was developed across Europe, including the UK, during the 1990s to provide a holistic and standardised approach to comprehensive geriatric assessment, and is a combined medical and social assessment tool. Development was supported by a grant from the European Regional Office of the World Health Organisation (WHO), involving cross-cultural adaptation and testing across several European countries. Itis a comprehensive geriatric assessments (CGAs) |
Quality of Life |
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CARE |
The Comprehensive assessment and Referral Evaluation |
329/143 |
The Comprehensive Assessment and Referral Evaluation (CARE) is anassessment technique which is intended to reliably elicit, record, grade and classify information on the health and social problems of the older person. The CARE is basically a semi-structured interview guide and an inventory of defined ratings. It is designated comprehensive because it covers psychiatric, medical, nutritional, economic and social problems rather than the interests of only one professional discipline.
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Quality of Life |
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OMFAQ |
Older Americans Resources and Services (OARS) Multidimensional functional assessment (OMFAQ) |
120 |
The Older Americans Resources and Services (OARS) methodology was designed to assess functional capacity in five dimensions (social resources, economic resources, mental health, physical health, and activities of daily living) and to measure use of and need for 24 types of generic services. It is the most widely evaluated older-people specific quality of life instrument with (internationally) the most evidence. |
Quality of Life |
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IC-PREM-Home |
Intermediate Care for Older People Home-Based PREM |
15 |
A pair of PREMs have been designed specifically to evaluate the delivery of person-centred care for older people in intermediate care services |
Person Centred Coordinated Care |
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IC-PREM-Bed |
Intermediate Care for Older People Bed-Based PREM |
15 |
A pair of PREMs have been designed specifically to evaluate the delivery of person-centred care for older people in intermediate care services |
Person Centred Coordinated Care |
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DCM |
Dementia Care Mapping |
Consists of four coding frames: mood enhancers (6 item scale); behaviour categories (23 items); personal detractions (PD) and personal enhancers (PE) (both contain 17 items, divided into five categories. Items are rated on a 2-point scale ranging between detracting and highly detracting for PDs and |
The aim of the tool is observing people with dementia living in formal care settings, driving development of person-centred care practice. Currently in 8th edition. Developed over a 3-year period from the previous version DCM7. Began with think tank of 33 experts in 2001 followed by series of eight international working groups. |
Person Centred Coordinated Care |
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CCRQ |
Client-Centred Rehabilitation Questionnaire |
30 |
Client-centred occupational therapy in rehabilitation services, drawing on principles that promote autonomy, client strengths, choice and partnership. |
Person Centred Coordinated Care |
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MPOC-A-34 |
Measure of Processes of Care 34-item version for adults |
34 |
A measure of client-centredness of care for parents of children with disabilities. Originally client and family-centred care in paediatric medicine, adapted for adults. MPOC-A is a self-administered 34-item questionnaire with positively worded short statements and a 7-point Likert response scale. |
Person Centred Coordinated Care |
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ICS-patient |
Individualised Care Scale- patient version |
38 |
Individualised care as an application of interactional models of nursing. The ICS was designed to measure patients' views on how individuality is supported through specific nursing interventions (ICA) and how they perceive individuality in their own care (ICB) during hospitalization. Focus on 3 domanis, individual patient char-acteristics in the clinical situation caused by the hos-pitalization (seven items); the patient |
Person Centred Coordinated Care |
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ICS-Staff |
Individualised Care Scale- staff version |
17 |
Individualised care as an application of interactional models of nursing. The ICS was designed to measure patients' views on how individuality is supported through specific nursing interventions (ICA) and how they perceive individuality in their own care (ICB) during hospitalization. |
Person Centred Coordinated Care |
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CCCQ |
Client-Centred Care Questionnaire |
15 |
A 15-item questionnaire measuring to what extent older people receiving home care experience the care as being client centred. Item generation from qualitative study, experts, staff and clients of home care. |
Person Centred Coordinated Care |
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PCCQ-staff |
Person-centred Climate Questionnaire- staff version |
14 |
PCQ is a questionnaire measuring to what extent the climate of health care settings is experienced as person centred bystaff. |
Person Centred Coordinated Care |
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Tereda |
Terada 2013 Untitled measure for Person-centered care and quality of life of patients with dementia |
8 |
Tereda is a questionnaire for evaluating person-centered care and is used to assess person-centered care and QOL of elderly patients with dementia. |
Person Centred Coordinated Care |
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PDC |
Person-Directed Care Measure |
35 |
Policy-driven origins: measure designed to evaluate local person-centred care initiative with aim of improving care relationships and job satisfaction. Aim is to evaluate to what extent settings meet person-directed care goals. Designed via expert generation of items, adding items from literature, two dimensions: person-directed care, and person-directed environment. |
Person Centred Coordinated Care |
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PCHC |
Person-centred Health Care for Older Adults Survey |
31 |
Developed following Item reduction (factor analysis) of a previously developed benchmarking person-centred care survey. Used to measure healthcare staff's practice, attitudes, and beliefs regarding person-centered healthcare. |
Person Centred Coordinated Care |
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PCFC |
Patient-Centered Family-Focused Care |
8 |
Palliative care literature integrating whole person perspectives with family-centredness. Assesses the degree to which care is patient centered and family focused. |
Person Centred Coordinated Care |
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P-CAT |
Person-centred Care Assessment Tool (P-CAT - professionals) |
13 |
Self-report assessment scale, the Person-centered Care Assessment Tool (P-CAT), which measures the extent to which long-term aged care staff rate their settings to be person-centered |
Person Centred Coordinated Care |
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ICI |
Individualized Care Instrument |
22 |
Individualised nursing care in long-term institutions for people with dementia. |
Person Centred Coordinated Care |
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VR-12 |
|
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The VR-12 was developed from the Veterans RAND 36 Item Health Survey (VR-36). |
Quality of Life |
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WHOQoL-BREF |
World Health Organization Quality of Life Instrument |
26 |
The WHOQOL assesses individuals' perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns. It has been developed collaboratively in several culturally diverse centres over four years. |
Quality of Life |
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QWB |
Quality of Well-Being Scale |
80 |
The QWB was developed using theory from the General Health Policy Model. This model includes several components, such as mortality (death) and morbidity (health-related quality of life). By administering the QWB before and after a treatment or intervention program, the
intervention can be described in terms of the quality adjusted life years that it produces or saves. |
Quality of Life |
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NHP |
Nottingham Health Profile |
38 |
The Nottingham Health Profile (NHP) measures health-related quality of life within the domains of energy, sleep, emotions, pain, mobility and social isolation as well as the frequency of health-related problems pertaining to paid employment, housework, hobbies, family life, social life, sex life and holidays. The NHP is well-documented with regard to reliability and validity, and is useful in describing the impact of chronic disease. The NHP is, moreover, a useful evaluative tool in patients with more pronounced disability. The NHP does perform well in populations with major burden of disease, and may be more responsive in these populations than the SF-36. Otherwise, it is less relevant for general population samples. |
Quality of Life |
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HUI3 |
Health Utilities Index |
15 |
HUI refers to both HUI Mark 2 (HUI2) and HUI Mark 3 (HUI3) instruments. The classification systems provide compact but comprehensive frameworks within which to describe health status. The multi-attribute utility functions provide all the information required to calculate single-summary scores of health-related quality of life (HRQL) for each health state defined by the classification systems. HUI provides comprehensive, reliable, responsive and valid measures of health status and HRQL for subjects in clinical studies. |
Quality of Life |
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EQ-5D |
EuroQol EQ-5D-3L |
6 |
A quick generic health status measure that can be used for clinical and economic evaluation. Whilst available in a large array of languages, and very short and rapid, the EQ-5D is not as sensitive, or comprehensive as slightly longer instruments, such as the 10-item PROMIS-GHS and the SF-36. This lack of sensitivity may impact on its utility for research and quality improvement purposes. Use of this measure is recommended when extreme brevity outweighs other concerns. |
Quality of Life |
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AQoL-8D |
Assessment of Quality of Life |
35 |
The AQoL-8D was constructed to improve the evaluation of health services that have an impact upon the psychosocial aspects of the quality of life. The AQoL-8D is a reliable and valid instrument which offers an alternative to the MAU instruments presently used in economic evaluation studies, and one which is particularly suitable when psychosocial elements of health are of importance. |
Quality of Life |
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PROMIS-GHS |
PROMIS-Global Health Scale |
10 |
A modern and promising generic Quality of Life measure. Whilst this does not have the same long history of alternative such as the SF-36 it is a serious contendor, given its sophisticated design, reduced items, good evidence (so far), and free use. |
Quality of Life |
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RAND-12 |
RAND-12 |
12 |
A very well used generic Quality of Life measure. Commonly used for quality-adjusted life year (QALY) calculations. |
Quality of Life |
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RAND-36 |
RAND-36 |
36 |
A very well used generic Quality of Life measure. Commonly used for quality-adjusted life year (QALY) calculations. The RAND taps into 8 concepts; physical functioning, bodily pain,role limitations due to physical health problems, role limitations due to personal or emotional problems, emotional well-being, social functioning, energy/fatigue, and general health perceptions. It also includesa single item that provides an indication of perceived change in health. |
Quality of Life |
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SF-12 |
Short-Form 12 |
12 |
A shorter version of the SF-36. If having only adequate physical and mental health summary scores is of interest, the SF-12 may be appropriate. |
Health-Related Quality of Life |
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SF-36 |
Short-Form 36 |
36 |
A very well used generic Quality of Life measure. Commonly used for quality-adjusted life year (QALY) calculations. The SF-36 is heavily used, historically well-validated and has a number of strengths, including its comprehensive coverage of general health and strong and well-studied psychometric properties. |
Health-Related Quality of Life |
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ES |
The Empowerment Scale |
6 |
The Empowerment Scale (ES) is a new self-report measure of patient positive attitude and sense of control, knowledge and confidence in decision-making, and enabling others in self-management for long-term conditions in primary care. The ES has demonstrated good reliability and validity (Small et al, 2013). The enabling others dimension is a novel dimension in need of further exploration. It relates to current self-management initiatives in the NHS, such as the Expert Patients Programme, and the Health Trainers initiative, which both rely on non-professionals to teach and empower patients who may be coping less well with their long-term conditions. The ES has similarities with the Patient Activation Measure (Hibbard et al, 2005) and a formal comparison might highlight advantages and disadvantages of each. Both measures have different psychometric properties and underlying scale structure. The ES is currently being validated and back translated in 9 countries, the first results and back translation of the ES will be available in French (Quebec) in 2017. |
Person Centred Coordinated Care |
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SWE-RES-23 |
The Swedish Rheumatic Disease Empowerment Scale |
23 |
A Swedish empowerment instrument for patients with rheumatic diseases. The already existing instrument, the Swedish Diabetes Empowerment Scale (SWE-DES-23), was adapted for use in patients with rheumatic diseases. The adapted instrument was called the SWE-RES-23. |
Person Centred Coordinated Care |
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PEER |
Psoriasis Empowerment Enquiry in the Routine practice |
12 |
PEER is a tool for measuring levels of empowerment in psoriatic patients, consisting of 12 items. |
Person Centred Coordinated Care |
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PPSS |
Parents Postnatal Sense of Security |
18 |
The Parents Postnatal Sense of Security (PPSS) scale measures both the parents' experiences and sense of security during the first postnatal week. It assesses both mothers' and fathers' postnatal sense of security concerning the first postnatal week. |
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GCOS-24 |
Genetic Counseling Outcome Scale |
24 |
The Genetic Counseling Outcome Scale (GCOS-24) is a patient-reported outcome measure (PROM) for clinical genetics services. Previous research was used to develop a draft 84-item questionnaire, of which 24 questions were selected to form the Genetic Counseling Outcome Scale. |
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CIDES |
Cyber Info-Decisional Questionnaire |
7 |
The Cyber Info-Decisional Questionnaire (CIDES) was developed to measure cyber informational and decisional empowerment. CIDES provides information about the extent to which computer-connected patients view digital peer support as an empowerment tool. |
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C-DEPS |
Chinese Diabetes Empowerment Process Scale |
15 |
Chinese version of the Diabetes Empowerment Process Scale. In people living with diabetes, empowerment can improve metabolic and psychosocial outcomes. A scale for measuring empowerment processes can also help healthcare professionals to optimize their empowering actions and would improve their interactions with people living with diabetes. |
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Swe-DES-23 |
Diabetes Empowerment Scale version 3 (Swedish) |
23 |
Swedish version of the Diabetes Empowerment Scale (Swe-DES-23). |
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DESv2 |
Diabetes Empowerment Scale version 2 (Chinese) |
20 |
The Diabetes Empowerment Scale (DES) is a measure of diabetes-related psychosocial self-efficacy. Version 2 of the DES is translated into chinese. |
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DESv1 |
Diabetes Empowerment Scale version 1 |
28 |
The Diabetes Empowerment Scale (DES) is a measure of diabetes-related psychosocial self-efficacy. |
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ICS |
Inpatient Consumer Survey (ICS) |
28 |
The ICS is a reliable measure of consumer satisfaction in psychiatric inpatient settings. The survery consists of various items covering 6 domains; dignity, rights, environment, empowerment, participation, and outcome, whereby patients mark their experiences on a disagree/agree five-point scale. |
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CEO-MHS |
Consumer Evaluation Of Mental Health Services |
26 |
Most mental health outcome and satisfaction measures have been developed by academic researchers or service providers. Consumers have been limited to the role of participant or advisor. The validity and reliability of these satisfaction measures have been challenged. This measure is a consumer satisfaction questionnaire in which consumers have worked as collaborative researchers to increase its face validity and relevance. |
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EQuiP |
Empowerment Questionnaire for Inpatients |
16 |
The EquiP is a questionnaire that measures levels of empowerment experienced by older adults admitted to a psychiatric ward. Diverse views were sought to inform the questionnaire through a triangulation method; opinions of researchers were collected through a Delphi survey, clinical staff from different disciplines completed questionnaires, and patients participated in two focus group sessions. |
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HPIQ |
Health Promotion Intervention Questionnaire |
19 |
The Health Promotion Intervention Questionnaire is intended to measure patients' subjectively experienced health-promoting interventions within mental health services. |
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ESv2 |
Empowerment Scale version 2 |
25 |
Subscales of the ESv1 were examined to see whether they fit a model of consumer empowerment that distinguishes self- and community orientations. |
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ESv1 |
Empowerment Scale version 1 |
28 |
A 28-item scale to measure the personal construct of empowerment as defined by consumers of mental health services. |
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HCEI |
Health Care Empowerment Inventory |
8 |
The Health Care Empowerment Model offers direction for the investigation of patient-controlled engagement and involvement in health care. At the core of the model is the construct of Health Care Empowerment (HCE). The HCEI makes efforts to measure, understand, and track changes in the ways in which individuals engage in health care. |
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BES |
Bann Empowerment Scale |
5 |
The Bann Empowerment Scale (BES) is a scale that measures patients' perceptions of provider support, patient-centered care, and empowerment as predictors of health outcomes. Designed to assess aspects of complementary and alternative medicine (CAM) provider support. |
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HEIQ |
Health Education Impact Questionnaire |
42 |
The HEIQ is a user-friendly, relevant, and psychometrically sound instrument for the comprehensive evaluation of patient education programs, which can be applied across a broad range of chronic conditions. |
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TES |
Treatment-Related Empowerment Scale |
10 |
The TES was developed to assess patients views of empowerment within the context of drug therapy for advanced HIV. In particular, the 10-item measure was constructed to focus on the areas of communication, treatment choice, decision-making and satisfaction (for example, my doctor supports my decisions about medicines, whether or not he/ she agrees with them). This measure may be of particular value for combination therapy regimens. |
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KAS-R |
Kim Alliance Scale (Revised) |
16 |
The KAS was developed to measure the quality of the therapeutic alliance from the patient's perspective, including patient empowerment. By triangulating literature findings and qualitative data, a conceptual framework was derived with four dimensions of alliance: collaboration, communication, integration, and empowerment. Using the exploratory series, KAS was refined into a 16-item KAS-R consisting of collaboration, integration, empowerment, and communication subscales. |
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KAS |
Kim Alliance Scale (Original) |
30 |
The KAS was developed to measure the quality of the therapeutic alliance from the patient's perspective, including patient empowerment. By triangulating literature findings and qualitative data, a conceptual framework was derived with four dimensions of alliance: collaboration, communication, integration, and empowerment. |
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PES |
Patient Empowerment Scale |
28 |
The Patient Empowerment Scale (PES) is an initial empowerment measure developed through an extensive review of literature combined with a series of in-depth interviews of cancer patients concerning their use of coping strategies. A set of twenty-eight statements were formulated from themes into a Likert-type scale for self-completion by cancer patients. |
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TiOS |
Trust in Oncologist Scale |
18 |
The Trust in Oncologist |
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HCRTS-R |
Health Care Relationship Trust Scale Revised |
13 |
Accurately measuring trust between patients and health care providers is important because low patient-provider trust can lead to poor treatment adherence and negative health outcomes. To measure patient-provider trust, the Health Care Relationship (HCR) Trust |
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HCRTS |
Health Care Relationship Trust Scale |
15 |
A sequential multi-method approach using focus groups, individual interviews, and quantitative instrument development procedures was used to develop and evaluate the HCRTS scale, |
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A-WFPTS |
Abbreviated Wake Forest Physician Trust Scale |
5 |
The length of the original scales to measure trust may limit their use because of the practical needs to minimize both respondent burden and research cost. The objective of this measure was to develop abbreviated scales to measure trust. |
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WFPTS |
Wake Forest Physician Trust Scale |
10 |
Various psychometric tests produced a 10-item unidimensional |
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TSPPD |
Trust Scale for the Patient-Physician Dyad |
51 |
TSPPD ia a bi-dimensional trust scale specific to patient-physician relationships designed to empirically assess various trust-related issues on both levels. |
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TPS |
Trust in Physician scale |
11 |
An instrument to assess a patient's interpersonal trust in their physician. Items were written to
refer to a patient's primary care provider rather than to physicians in general. Three dimensions of trust were assessed: dependability of the physician (looks out for the patient's best interest), confidence in the physician's knowledge and skills, and confidentiahty and reliability of information between the physician and the patient. |
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4HPQ |
4 Habits Patient Questionnaire |
15 |
Designed as part of a large generic clinical communication program, the patient-reported scale has been shown to correlate with observer-based evaluations of communication. |
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PPRI |
The Physician-Patient Relationship Inventory |
14 |
PPRI is designed to innvestigate the association of physician |
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CPFT |
Communication of Pulmonary Function Test |
19 |
Designed to assess the quality of communication of Pulmonary Function Test results. |
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CARE-C |
Visual CARE measure 5Q children |
5 |
The Consultation and Relational Empathy (CARE) |
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CARE-Vis |
Visual CARE measure 10 Q adults (cognitive/communication/language difficulties) |
10 |
CARE ( consultatation and relational empathy) was developed using both qualitative and quantitative approaches. It is designed to provide a consultation process measure based on a broad definition of empathy, which is meaningful to patients irrespective of their socio-economic background. |
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VOICE |
Views on Inpatient Care (VOICE) |
19 |
A patient-reported outcome measure of perceptions of acute care. VOICE uses a six-point Likert scale, ranging from |
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OEQ |
The Outcomes and Experience Questionnaire |
11 |
One short instrument questions about two distinct domains |
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SURE |
SURE scale |
4 |
SURE was developed so that there could be a shorter alternative to the Decisional Conflict Scale; a scale that allows health professionals to identify patients with decisional conflict (Legare, et al, 2010). The selection process for the four items within the measure was based on the core concepts of the Ottawa Decision Support Framework, which are reported as having relevancy at all stages of the decision making process; feeling uncertain, feeling informed, feeling clear about values and feeling supported in decision-making (OConnor, et al, 1998) The items were developed in French and English concurrently and were all positively framed. |
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STAR-P |
Scale to measure Therapeutic Relationship - Patient version |
12 |
STAR-P was designed to measure therapeutic relationships (TRs) from a patient perspective. The patient (STAR-P) and clinician scales (STAR-C) each have 12 items comprising three subscales: positive collaboration and positive clinician input in both versions, non-supportive clinician input in the patient version, and emotional difficulties in the clinician version. |
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SDM-Q9 |
Shared Decision Making Questionnaire |
9 |
Revised an existing instrument (Shared Decision Making Questionnaire; SDM-Q), including the generation of new items and changing the response format leading to the development of a 9-item version (SDM-Q-9). |
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SRS |
Session Rating Scale |
10 |
The SRS was specifically designed to be a clinical tool, not a research instrument. The SRS combined elements of various measures into a 10-item, Likert-scaled instrument. |
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SES6G |
Self-efficacy Scale for Chronic disease 6 item scale |
6 |
Developed and validated by the Stanford Patient Education Centre. Evolved from several scales used in a chronic disease management study by Lorig et al (2001). It covers several domains that are common to a several types of chronic disease such as symptom control, role function, emotional functioning and communication with health care practitioners. Each of the 6 items are rated from 1 (not at all confident) to 10 (totally confident). The overall score is dervied from the mean of the 6 items. Higher scores indicate self-efficacy (Langweiler & McCarthy, 2015). |
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HCS |
Health Confidence Score - R-Outcomes |
4 |
The Health Confidence Score (HCS) monitors peoples' confidence in their ability to manage their own health and engage with health and care providers. |
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RMCC |
Relational and Management Continuity of Care |
25 |
The RMCC aims to quantify problems of relational and management continuity of care in patients with multiple long-term conditions. The questionnaire includes 16 items concerning relational and management continuity of care. |
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MHRS |
Mental Health Recovery Star |
10 |
The MHRS assesses ten life domains (managing mental health; self-care; living skills; social networks; work; relationships; addictive behaviour; responsibilities; identity and self-esteem; trust and hope) each of which are represented diagrammatically as a point on a ten-arm star. Each domain (or arm) is rated on a |
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QOC |
Quality of Communication Questionnaire, INTERVIEWER-ADMINISTERED VERSION (Version 1.0) |
17 |
The QOC is an instrument for assessing the quality of patient-doctor communication around end-of-life issues. |
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QDTS |
Quality of Discharge Teaching Scale |
18 |
The Quality of Discharge Teaching Scale (QDTS) is used to measure patients' perceptions of the amount of discharge-related informational content they needed and received. |
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QPP-SF |
Quality from the Patients Perspective Questionnaire Shortened version |
24 |
The quality from the patient's perspective (QPP) questionnaire is based on a theoretical model (Wilde et al., 1993), which stipulates that patients' perceptions of what constitutes quality of care are formed by their encounters with an existing care structure and by their systems of norms, expectations, and experiences. Quality of care can be understood in the light of two conditions: the resource structure of the care organization and patients' preferences. The resource structure of the care organization consists of person-related as well as physical and administrative environmental qualities. Patients' preferences have both rational and human aspects. Within this framework, patients' perceptions of quality of care may be considered in four dimensions: medical |
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HCSHS |
Health Care Systems Hassles Scale |
16 |
The Components of Primary Care Instrument was used to measure 4 attributes of primary care: accumulated knowledge of the patient by the clinician, coordination of care, communication, and preference for first contact with their primary care clinician. |
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PPE-15 |
Picker Patient Experience Questionnaire |
15 |
The Picker Patient Experience Questionnaire (PPE-15) is a fifteen item questionnaire
covering eight domains including information & education and coordination of care. The PPE-15 was originally designed for use in inpatient care settings (Jenkinson 2002). It can be used for both planned and emergency inpatient settings, and was developed to identify patient experiences and problems with specific health care processes that affect the quality of care in inpatient settings. It contains specific questions about whether specific processes and events occurred during the patients care episode.
Whilst it has good, broad coverage of P3C domains, it does not include goal setting, single point, case manager, continuity of care, consistency of care and knowledge. |
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PPCB |
Physician-Patient Communication Behaviours Scale |
13/17 |
There had been no scales specifically developed to assess physician-patient communication behaviors (PPCB) in the sub-Saharan population. Therefore an existing PPCB scale was revised and tested for HIV patients in Kenya. The measure consists of 17 items (five-point scale) measuring PPCB which where initially adopted from the Matched Pair Instrument (MPI). |
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PCCQ-patient |
Person-centred Climate Questionnaire (PCCQ-patient version) |
17 |
The person-centred climate questionnaire is designed to assess what extent the climate of health care settings is perceived by patients as being person centred. Questionnaire items where generated from qualitative studies and contains 17 items in two subscales: safety and hospitality. |
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M-PICS |
Modified Perceived Involvement in Care Scale |
20 |
M-PICS is a modified version of the Perceived Involvement in Care Scale. It revised the original measure by ugmenting it with
items that were pain specific as well as with questions that covered patient perceptions of the physician's control of the information-exchange
process. |
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POC |
Perceptions of Care (POC) |
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PICS |
Perceived Involvement in Care Scale |
13 |
The Perceived Involvement in Care Scale (PICS) is a brief, psychometrically sound,
self-administered measure of patients perceptions of doctor-patient communication during
the medical encounter. The PICS assesses three domains of activities during the medical
encounter: doctor facilitation of patient involvement (five items); patient information
provision (PI) (four items); and patient participation in decision making (four items).
Items reflect overt behaviours of patients and physicians observed during routine outpatient
visits. The PICS has been administered to outpatient samples of breast cancer and other,
non-cancer patient populations, although not to patients with persistent pain as a presenting
problem. |
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PRA |
Patient Reactions Assessment |
15 |
The PRA is composed of 3 5-item scales designed to measure the perceived quality of the informative (Patient Information Index) and affective (Patient Affective Index) behaviors of the provider and the patient's perceived ability to initiate communication (Patient Communication Index) about the illness. |
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PPPC |
Patient Perception of Patient-Centredness (PPPC) |
14 |
The PPPC was developed in Canada and based on empirical studies of the doctor-patient relationship (M. Stewart et al. 2000). The tool measures patient perceptions of patient-centred care during the last visit with a family physician. PPPC showed significant correlations with better recovery from discomfort, alleviation of concerns, and better emotional health 2 months after the initial visit, and with use of fewer diagnostic tests and referrals (M. Stewart et al. 2000). Patients perception of patient-centred behaviours was strongly associated with patients satisfaction with information (Mallinger, Griggs, and Shields 2005). In a systematic review, the PPPC measures 3 of the 4 dimensions of the conceptual framework of PCC (Hudon et al. 2011) - disease and illness experience (4 items), whole person (1 item), and common ground (9 items).
Hudon, Catherine, Martin Fortin, Jeannie L. Haggerty, Mireille Lambert, and Marie-Eve Poitras. 2011. Measuring Patients Perceptions of Patient-Centred Care: A Systematic Review of Tools for Family Medicine. Annals of Family Medicine 9 (2): 155 |
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P3C |
Parent Perceptions of Primary Care |
23 |
The P3C is a practical, reliable, and valid measure of parents' reports of pediatric primary care quality. This brief measure could be used alone, or in conjunction with other measures, to enhance outcomes and evaluate the impact of systems changes on the delivery of the main elements of primary care. |
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PC |
Patient Perception of Continuity Instrument |
23 |
The PC is a generic measure of management continuity for patients who regularly see more than one clinician, and who are at risk of discontinuity and fragmented care. The measure was developed in Canada with extensive patient involvement. Initial publication revealed it to be a reliable measure of continuity and coordination of care across the entire system (Haggerty et al. 2012). Patient perception of continuity, as measured by the PC instrument, was strongly and significantly associated with patient satisfaction, but was not associated with costs. The questionnaire consists of 23 statements describing various aspects of an ongoing patient-physician longitudinal relationship. Questions cover two main
factors: (1) structure of health care delivery (11 items) and (2) interpersonal relationship between physician and patients (12 items) |
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PPC |
Patient Participation Scale |
6 |
A tool to measure patient participation in shared treatment decision-making in depression and mental health. |
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PPRQ |
Patient Participation in Rehabilitation Questionnaire |
23 |
A questionnaire measuring patient participation in rehabilitation. Items were developed from interviews with patients who had a spinal cord injury. Findings from the testing phase led to the assertion that the PPRQ can adequately assess central aspects of participation in care and rehabilitation from the perspective of patients with spinal cord injury. The developers state that further studies, that utilise larger samples, will have to be conducted, so that the scale structure can be confirmed, as well as the sensitivity and responsiveness of the questionnaire. |
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PHCPCS |
Patient-Health Care Provider Communication Scale |
21 |
PHCPS is a patient-perspective driven measure of the quality of patient-health care provider communication. It has the potential for use in clinical practice, provider education, and further studies to improve health care to patients with rheumatoid arthritis. |
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PFC |
Patient Feedback on Consultation Skills |
16 |
A feedback questionnaire, in which patients assess
consultation skills based on their previous experiences. |
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PEQ |
Patient Experience Questionnaire (Pettersen) |
18 |
The Patient Experience Questionnaire (PEQ, Pettersen et al., 2004) was developed from
a large sample of respondents to capture patients experiences of quality of hospital
care. It is a free to use, reliable, validated measure of patient experience. |
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I-PAHC |
Patient Experience with Inpatient Care |
16 |
The In-Patient Experiences of Health Care (I-PAHC) can be useful in assessing patients' evaluations of care delivery in low-income settings. The questionnaire is brief and can be integrated into health systems strengthening efforts with the support of leadership at the health facility and the country levels. |
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PEI |
Patient Enablement Instrument |
6 |
The Patient Enablement Instrument (PEI) has been suggested as a means of examining various aspects of a
clinical consultation for the purpose of capturing dimensions other than patient satisfaction. The
instrument focuses instead on the impact of a consultation on a patients self-perceived ability to understand
and cope with health issues and disease. The instrument has been described to be related to, but different from, measures of satisfaction |
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P-CIS |
Patient-centred Inpatient Scale (P-CIS) |
20 |
A tool for measuring patient perceptions of person-centred care |
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PCOMQ |
Patient-centred Outcomes Questionnaire |
20 (follow up =30+) in 10 domains |
A clinical PROM for measuring outcomes in chronic spine pain that incoporates elements of patient-centred care via personalised goal setting and quality of life. |
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PAV-COM |
Patient Approach and Views toward Healthcare Communication Scale |
9 |
The PAV-COM measure is a valid tool for assessing patient approaches and views toward
communication with physicians. This measure can be used to evaluate interventions to improve patient
participation during healthcare encounters. |
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PAM-22 |
Patient Activation Measure (22 item) |
22 |
The PAM is a tool that measures how engaged a patient is in their healthcare by assessing their knowledge, skill and confidence for self-management. Unlike other measures of engagement, the PAM not only captures the patients beliefs about their ability to self-manage, but also the likelihood that they will act on these beliefs.
The PAM has been used in several different countries, including the UK. There are long (22 item) and short (13 item) versions available. To various degrees, the PAM has been applied in three main ways: as a means of intervening to improve individuals engagement and outcomes; to segment populations, and carry out risk stratification, so that interventions can be targeted to at risk groups and lastly, to measure the performance of health care systems and evaluate the effectiveness of interventions to involve patients care. |
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PAM-13 |
Patient Activation Measure (13 item) |
13 |
The PAM is a tool that measures how engaged a patient is in their healthcare by assessing their knowledge, skill and confidence for self-management. Unlike other measures of engagement, the PAM not only captures the patients beliefs about their ability to self-manage, but also the likelihood that they will act on these beliefs.
The PAM has been used in several different countries, including the UK. There are long (22 item) and short (13 item) versions available. To various degrees, the PAM has been applied in three main ways: as a means of intervening to improve individuals engagement and outcomes; to segment populations, and carry out risk stratification, so that interventions can be targeted to at risk groups and lastly, to measure the performance of health care systems and evaluate the effectiveness of interventions to involve patients care. |
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PAIEC |
Patient assessment of integrated elderly care |
21 |
The PAIEC is a recently developed version of the PACIC specifically designed for older populations (Uittenbroek et al. 2015). Similar to the PACIC, it has good coverage of a high number of important domains, including patient activation; delivery system design and decision support; goal setting and tailoring; problem-solving and contextual counselling; follow-up and coordination. However, it does not tap carer involvement, single point of contact/case manager and consistency of contact. Initial publication reveals it to be a and valid measurement instrument that evaluates quality of integrated care and support from the perspective of elderly people (Uittenbroek et al. 2015). |
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PACIC |
Patient Assessment of Care for Chronic Conditions |
20 |
The PACIC (Glasgow et al. 2005) is a well-established tool for measuring patient experience of chronic illness care and is applicable to many settings. It was developed in the US and based on the influential Chronic Care Model (CCM). It provides good coverage of the P3C domains. It is a 20-item measure that enables patients with chronic conditions to report on the care they have recieved within the past 6 months. |
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OxPIE |
The Oxford Patient Involvement and Experience Questionnaire |
11 |
A UK based 11 item measure for assessing inpatient care for patients with Limiting Long Term conditions (LLTCs). Items tap areas of the following domains: My goals/ outcomes, care Planning, transitions, decision making, information and communication. It has been used to that Patients with LLTCs were more critical of their inpatient care than those with no LLTCs (Hewitson et al. 2014). |
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OX-PAQ |
The Oxford Participation and Activities Questionnaire |
23 |
The Oxford Participation and Activities Questionnaire (OX-PAQ) is a short, patient-reported outcome measure that is grounded on the World Health Organization International Classification of Functioning, Disability, and Health (ICF) (Kelly et al, 2015a). A distinguishing feature of this measure is that it taps into a patients level of social connectivity. Initial evaluations of the measure suggest that it can provide a valid and reliable measure of participation and activity. There are plans in place to validate it further by assessing its performance in a range of additional conditions and by assessing its sensitivity to change and predictive capabilities (Kelly et al, 2015b). |
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ORS |
Outcome Rating Scale |
4 |
A simple, four-item session by session measure designed to assess areas of life functioning known to change as a result of therapeutic intervention. |
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OPPQNCS |
Oncology Patients' Perceptions of the Quality of Nusing Care Scale |
18 |
The OPPQNCS measures the quality of cancer nursing care from the patients perspective. Long (40 items) and Short form (18 item) versions are available. The long form may be especially useful for quality improvement purposes; the short form may be useful when respondent burden is a concern. The OPPQNCS can be used in studies designed to examine relations among cancer patients perceptions of care quality, health care system characteristics (e.g., nurse staffing), patient characteristics (e.g., race, gender), and nurse sensitive patient outcomes (e.g., health related quality of life; psychological sense of well-being). |
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Dyadic OPTION |
Dyadic OPTION |
12 |
The dyadic version of the existing OPTION measure was developed so that a single tool could be used to assess the extent to which patients had engaged in shared decision making from two viewpoints (the patients and the health care practitioners). The developers believed it would be more advantageous to adapt an existing decision making tool, rather than develop a new one, because they could benefit from the rigorous testing that had already been applied to the original measure. Specifically, that it had the psychometric data to support its uni-dimensional nature (Cook & Kenny, 2005; LeBlanc, Kenny, OConnor & Legare, 2009). |
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NORPEQ |
Norwegian Patient Experience Questionnaire |
8 |
The NORPEQ was designed to include a core set of questions covering the most important
aspects of patient experiences that can be used cross-nationally and alongside existing longerform
national survey questionnaires. It is an
8-item instrument design to measure patient experiences of hospital care. The instrument
consists of 6 item assessing patient experience (information on tests, staff interested in
problem, professional skills of nurses/doctors, nursing care, and understanding doctors)
and two additional items measuring global satisfaction and perceptions of incorrect
treatment. |
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MPI |
Matched Pair instrument (PATIENT VERSION) |
19 |
This measure uses 19 items to capture information from the patient about how their visit with a doctor unfolded. It focuses on both the process aspects of the visit (e.g. patient greeting, listening, and understanding) as well as the content of the visit (e.g. explanations, treatment options, next steps). There is a patient and doctor version and because the item number is relatively low, it can be completed at the end of the visit without causing too much burden to the patient. |
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P3C-EQ |
Person centred coordinated experience questionnaire (formerly know as the modified long term conditions questionnaire 6) |
11+trigger question |
The most modern of the broad-coverage P3C measures, it is a modified version of the LTCQ-6. The measure was developed in 2015, so that there could be a measure that provided extensive coverage of the domains of Person Centred Care and Coordination. The development process involved adding additional questions to the original measure that addressed evolving healthcare concepts, such as coordination and the use of personalised care plans. It was developed through extensive stakeholder engagement with patients, commissioners and practitioners who chose this measure to develop from a shortlist of identified measures.
Despite its very broad coverage, the measure is concise and efficient. It probes most domains of P3C in 11 questions (with the only exceptions being continuity of care and consistency of care). However if this measure is used with the same cohort over time, continuity can be explored through the combined construct of the tool. |
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LTC6 |
The long term conditions questionnaire 6 |
6 |
The LTC6 Questionnaire asks patients with a long term condition about their healthcare over the last 12 months. It includes questions about involvement in decision- making, although the focus is on self-management. The measure can be used to drive improvements at both the population and provider level.
The LTC6 Questionnaire asks patients with a long term condition about their experience and understanding of the healthcare they have received over the last 12 months. It asks 6 questions about how involved people felt in decisions about their care and how well supported they felt to manage their own health. |
Person Centred Coordinated Care |
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JSPPPE |
Jefferson Scale of Patient Perceptions
of Physician Empathy |
5 |
A brief scale (5 item) for assessing patients perceptions of their physicians empathic engagement. Originates in the USA and concentrates on the domain of therapeutic relationships (PCCC behaviours and communication skills). |
Person Centred Coordinated Care |
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IntegRATE |
IntegRATE |
4 |
A brief and generic patient-reported
measure of integration in health care delivery. |
Person Centred Coordinated Care |
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IDPCS |
Instrument on Doctor-Patient Communication Skills |
19 |
Measures patient perception of physician communication skills. Uses 5-point Likert scale (strongly disagree to strongly agree).Caputres both patient and doctor perceptions of communication. |
Person Centred Coordinated Care |
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INSPIRE |
INSPIRE (BRIEF) |
5 |
INSPIRE is a measure designed to assess a service user's experiences of the support they receive from a mental health worker for their recovery. It has two versions: a 27-item full version (INSPIRE) and a 5-item short version (Brief INSPIRE). Both versions are completed by a service user about their worker. It was developed at King's College London.
Both versions of INSPIRE have been psychometrically evaluated |
Person Centred Coordinated Care |
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IAPT-PbR |
IAPT-PbR Patient experience measure |
9 (and open-text box) |
Patient choice and satisfaction for the Improving Access to Psychological Therapies initiative. |
Person Centred Coordinated Care |
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HowRu |
R-outcomes engagement |
4 |
HowRu captures peoples quality of life. It has four items (discomfort, distress, disability and dependence), rated using four levels (none, a little, quite a lot and extreme), providing 256 possible states (4(4)); it has an aggregate scoring scheme with a range from 0 (worst) to 12 (best). |
Person Centred Coordinated Care |
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HowRwe |
R-Outcomes HowRwe |
4 |
HowRwe is a short generic patient-reported
experience measure (PREM), which
measures patients perceptions of the care
and service provided. It is suitable for all
types of patient and care settings. |
Person Centred Coordinated Care |
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Health care system hassles (chronic illnesses) |
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HCEQ |
The Health Care Empowerment Questionnaire |
10 |
This tool measures the extent of indiviudal empowerment in relation to personal health care and services. It was created by identifying individual empowerment and indicators from the literature, devising related items and then testing them with a sample of older people. |
Person Centred Coordinated Care |
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HCCQ |
Health Care Communication |
13 |
A 13-item questionnaire comprising four components in outpatients' experience in the healthcare communication domain: problem solving, respect, lack of hostility, and nonverbal immediacy. |
Person Centred Coordinated Care |
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FCCS |
Family-Centred Care Scale |
7 |
A seven-item instrument designed to measure a parents experience of nursing care that embodies core principles of family-centered care. |
Person Centred Coordinated Care |
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ESQ |
Experience of Service Questionnaire |
15 (12 are scored) |
A tool designed for the parent or carer of a child in mental health services. |
Person Centred Coordinated Care |
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DISQ |
Doctors Interpersonal Skills Questionnaire |
11 |
A 12 item scale developed to gather patient feedback on doctors interpersonal skills. Developed in the UK, questions focus on the domains of therapeutic relationships (PCCC behaviours and communication skills) and information sharing. |
Person Centred Coordinated Care |
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DCS |
Decisional Conflict Scale |
16 |
A scale that elicits; health-care |
Person Centred Coordinated Care |
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DSES |
Decision Self-Efficacy Scale |
11 |
A tool that identifies the factors contributing to difficulty in decision-making regarding treatment and evaluates decision-supporting interventions. |
Person Centred Coordinated Care |
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Cues |
Cues |
17 |
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Person Centred Coordinated Care |
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CPS |
Control Preferences Scale |
5 cards |
The Control Preferences Scale consists of 5 cards representing different roles individuals may assume in the treatment decision-making process. Each role is described by a statement and a cartoon. These roles range from the individual making the treatment decisions, through the individual making the decisions jointly with the physician, to the physician making the decisions. The CPS involves subjects in making a series of paired comparisons to provide their total preference order over the five cards.
A. I prefer to make the decision about which treatment I will receive.
D. I prefer that my doctor makes the final decision about which treatment will be used, but seriously considers my opinion - may count as one that is for the seldome heard group |
Person Centred Coordinated Care |
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CCM |
Consultation Care Measure |
21 |
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Person Centred Coordinated Care |
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CPCI |
Components of Primary Care Index |
20 |
A 20 item tool developed in the USA to assess patient satisfaction with the major aspects of primary care delivery (interpersonal communication, the doctors accumulated knowledge of the individual patient, patients preference to see their regular doctor and care coordination). |
Person Centred Coordinated Care |
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CAT |
Communication Assessment Tool |
14 |
The Communication Assessment Tool (CAT) is a 15 item measure, developed in the US, which can be used by patients to assess the interpersonal and communication skills of physicians through a five-point response scale (5=excellent). Usability has been enhanced by the items being written at fourth grade level (age 9-10). 14 Items focus on the physician and one addresses the behaviour of the staff. The initial pool of possible items were developed by drawing upon existing models and instruments of communication. These items were then tested within patient focus groups and cognitive interviews, which led to item refinement and elimination. The final measure was tested in a study involving 905 patients and 38 physicians. |
Person Centred Coordinated Care |
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CollaboRATE |
CollaboRATE |
3 |
CollaboRATE was designed to be a rapid and frugal means of measuring patients experiences of shared decision making. It contains three questions that patients (or if necessary parents, or representatives) complete following a health care encounter. It was intended to be a generic measure that could be used in research as well as within all routine heath care settings and for any type of condition (Barr, Thompson, Walsh, Grande, Ozanne & Elwyn, 2014). |
Person Centred Coordinated Care |
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CTM-15 |
Care Transitions Measure 15-question version |
15 |
This measure is cited as being the most widely used measure of care transition quality (Coleman et al. 2002) .The 4 CTM domains, which derived from patient focus groups, are: (1) Information transfer, (2) Patient and Caregiver Preparation, (3) Support for Self-Management, and (4) Empowerment to Assert Preferences. A shorter version of the measure is available that only has 3 items. The measure provides good coverage of a variety of aspects of person-centredness, with the exception of single point of contact/key worker and therapeutic relationship. However, poor psychometric properties have been reported. An independent evaluation revealed that the CTM-15 had good internal consistency (Cronbach's alpha=0.95) but demonstrated acquiescence bias (8.7% participants responded Strongly agree and 19% responded Agree to all items) and limited score variability (Anatchkova et al. 2014).
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CTM-3 |
Care Transitions Measure 3-question version |
3 |
The most widely used measure of care transition quality is the Care Transitions Measure (CTM-15). This is a brief 3-question version. The 4 CTM domains derived from patient focus groups are; information transfer, patient and caregiver preparation, support for self-management, and empowerment to assert preferences. |
Person Centred Coordinated Care |
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CARE |
Consultation and Relational Empathy Scale |
10 |
It measures empathy in the context of the therapeutic relationship during a one-on-one consultation between a clinician and a patient. Originally developed and rigorously tested for use by GPs, it has since been successfully used by other medical staff, allied health professionals (AHPs) and nurses (Widely applicable). Questions cover communication, therapeutic relationship and decision making (maps on well to PCC domains). |
Person Centred Coordinated Care |
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CES-P |
Care evaluation Scale - Patient version |
23 |
A scale designed to measure the quality of the structure and process in palliative care from the patient's perspective. |
Person Centred Coordinated Care |
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PACIC+ |
Patient Assessment of Chronic Illness Care+ |
26 |
Patient experience of chronic illness care. This extended version of the PACIC includes the same 20 items as the original measure, but adds six items to the original instrument. These 6 questions derive from the 5As model (ask, advise, agree, assist, and arrange), a patient centered model of behavioral counseling that is congruent with the CCM and has been frequently used to enhance self management support and linkages to community resources. |
Person Centred Coordinated Care |
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THF |
The Human Five |
5 |
An individualised measure that allows patients to set personal goals on five key areas of health and wellbeing |
Person Centred Coordinated Care |
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